Table 2.
Current stage of illness and diagnostic characteristics of sample.
| Variable | Count (% of Working Sample) |
|---|---|
| Current stage of illness | |
| Chronic LD a | 61% |
| Late untreated LD b | 18% |
| Early Lyme disease c | 6% |
| Don’t know/Other | 15% |
| Stage when diagnosed | |
| Late untreated LD b | 70% |
| Early Lyme disease c | 22% |
| Don’t know/Other | 8% |
| Key diagnostic factors | |
| Clinician diagnosed (entry criteria for registry) d | 100% |
| Recollection of tick bite | 41% |
| Recollection of EM rash e | 34% |
| With supportive lab tests | 78% |
| 1 or more coinfection | 60% |
| Self-reported health status as fair or poor | 65% |
| Disabled (with or without disability benefits) | 32% |
a Remained ill for six months or more after treatment with antibiotics for 10–21 days. b Diagnosed and untreated for six months or more after symptom onset. c “Within days to weeks after my tick bite or exposure, I experienced symptoms associated with Lyme disease”. d To be enrolled, patients must have self-reported US residency and diagnosis by a healthcare provider. e Because of a branching error in the initial survey, patients were re-asked this question. This data includes the 1190 who responded to the revised question.