Table 4. Most Important Participation Factors.
| Participation Factor | No. (%) of Respondents Rating Very Important | |
|---|---|---|
| 2015 (n = 12 009)a | 2017 (n = 12 427)b | |
| Potential risks and benefits | 9059 (75.4) | 10 264 (82.6) |
| Purpose of the clinical research study | 8263 (68.8) | 9269 (74.6) |
| Types of medical procedures requiredc | 6374 (53.1) | 9063 (72.9) |
| If my confidentiality would be protected | 6745 (56.2) | 7783 (62.6) |
| Physical location of the research study center | 6591 (54.9) | 7429 (59.8) |
| Potential costs and reimbursements | 5918 (49.3) | 7106 (57.2) |
| Length of participation | 5836 (48.6) | 7019 (56.5) |
| Receiving a summary of the study results after my participation ended | 6270 (52.2) | 6979 (56.2) |
| Being provided with supporting information on the clinical research study | NA | 6703 (53.9) |
| Provided with information on managing my health condition in general | NA | 6580 (52.9) |
| Duration of each study visit | NA | 6157 (49.5) |
| No. of study visitsc | 6374 (53.1) | 5931 (47.7) |
| If I would have access to the study drug after my participation ended | 5006 (41.7) | 5817 (46.8) |
Abbreviation: NA, not asked (in 2015 study).
a
Data are from the 2015 Center for Information & Study on Clinical Research Participation Perceptions & Insights Study (all respondents).
b
Data are from the 2017 Center for Information & Study on Clinical Research Participation Perceptions & Insights Study (all respondents).
c
Question grouped with other attribute in 2015 study.