Table 1.
Percent distribution of responses to Likert questions
| 1. How familiar are you with the role of genetics in causing diseases like cancer? | ||
| Very familiar or somewhat familiar, 94% | Not very familiar or definitely not familiar, 6% | Not sure, 0% |
| 2. How familiar are you with the role of genetics in causing diseases other than cancer? | ||
| Very familiar or somewhat familiar, 81% | Not very familiar or definitely not familiar, 16% | Not sure, 3% |
| 3. How interested are you to learn about what genetic abnormalities might put you at increased risk for cancer? | ||
| Very interested or somewhat interested, 100% | Not very interested or definitely not interested, 0% | Not sure, 0% |
| 4. How interested are you to learn about what genetic abnormalities might put you at increased risk for diseases other than cancer? | ||
| Very interested or somewhat interested, 88% | Not very interested or definitely not interested, 3% | Not sure, 9% |
| 5. How important do you think your genetic risks for cancer are for your family members? | ||
| Very important or somewhat important, 97% | Not very important or not important at all, 0% | Not sure, 3% |
| 6. How important do you think your genetic risks for diseases other than cancer are for your family members? | ||
| Very important or somewhat important, 91% | Not very important or not important at all, 0% | Not sure, 9% |
| 7. Do you think that learning more about your genes would improve your sense of control of your health? | ||
| Very much or somewhat, 90% | Not very much or not at all, 3% | Not sure, 6% |
| 8. Do you think that learning more about your genes would leave you feeling hopeless: that you could not control your future health? | ||
| Very much or somewhat, 31% | Not very much or not at all, 53% | Not sure, 16% |
| 9. Do you think that learning more about your genes would improve your health? | ||
| Very much or somewhat, 91% | Not very much or not at all, 3% | Not sure, 6% |
| 10. Would knowing more about your genes benefit your family? | ||
| Very much or somewhat, 97% | Not very much or not at all, 0% | Not sure, 3% |
| 11. Would you feel guilty about the possibility of passing a genetic mutation onto your child? | ||
| Very much or somewhat, 56% | Not very much or not at all, 31% | Not sure, 13% |
| 12. How would you weigh the advantages and disadvantages to you of having a gene panel test? | ||
| Disadvantages outweigh advantages greatly or disadvantages outweigh advantages somewhat, 16% | Disadvantages and advantages are the same, 16% | Advantages outweigh disadvantages somewhat or advantages outweigh disadvantages greatly, 68% |
| 13. How would you weigh the advantages and disadvantages to you of having a test that looks at all of your genes? (Full gene panel) | ||
| Disadvantages outweigh advantages greatly or disadvantages outweigh advantages somewhat, 25% | Disadvantages and advantages are the same, 19% | Advantages outweigh disadvantages somewhat or advantages outweigh disadvantages greatly, 56% |
| 14. I plan to have a gene panel in the next year/12 months. | ||
| Extremely unlikely or moderately unlikely or a little unlikely, 34% | A little likely or moderately likely or extremely likely, 53% | Neither unlikely nor likely, 13% |
| 15. How likely or unlikely is it that you will have a gene panel test in the next year/12 months? | ||
| Extremely unlikely or moderately unlikely or a little unlikely, 41% | A little likely or moderately likely or extremely likely, 53% | Neither unlikely nor likely, 6% |
| 16. For me to have a gene panel test in the next year/12 months is: | ||
| Extremely difficult or moderately difficult or a little difficult, 28% | A little easy or moderately easy or extremely easy, 47% | Neither difficult nor easy, 25% |
| 17. I plan to have a full gene panel test in the next year/12 months. | ||
| Extremely unlikely or moderately unlikely or a little unlikely, 50% | A little likely or moderately likely or extremely likely, 38% | Neither unlikely nor likely, 12% |
| 18. How likely or unlikely is it that you will have a full gene panel test in the next year/12 months? | ||
| Extremely unlikely or moderately unlikely or a little unlikely, 53% | A little likely or moderately likely or extremely likely, 38% | Neither unlikely nor likely, 9% |
| 19. For me to have a full gene panel test in the next year/12 months is: | ||
| Extremely difficult or moderately difficult or a little difficult, 47% | A little easy or moderately easy or extremely easy, 28% | Neither difficult nor easy, 25% |