Table 1.
Descriptive characteristics of participants (N=221)
| Patients (n=111) |
Caregivers (n=110) |
Test statistic,a p value | |
|---|---|---|---|
| Sociodemographic characteristics | |||
| Age (mean; range; SD) | 53.7; 22–71; 10.3 | 53.2; 18–86; 13.6 | 0.345, 0.731 |
| Sex, Female % (n) | 44 (49) | 71 (78) | |
| Ethnic Group, European American % (n) | 95 (106) | 95 (104) | b .000 |
| African American % (n) | 5(5) | 5(5) | |
| Native American % (n) | 0 | 1(1) | |
| Financial situationc | −1.111, 0.269 | ||
| Do not have enough for basic requirements | 10(11) | 7(7) | |
| Have just enough to get along on | 41 (46) | 40 (42) | |
| Are comfortable | 49 (54) | 53 (56) | |
| Highest education level, > college graduate | 34 (38) | 43(47) | .121, <.001 |
| Marital status, married/partnered %(n) | 77 (85) | 81(89) | .286, <.001 |
| Type of Pt-C relationship, spousal %(n) | 61 (68) | ||
| Pt parent-Cg Adult child %(n) | 11 (12) | ||
| Pt Adult child - Cg parent %(n) | 13 (14) | ||
| Sibling/sibling in law %(n) | 13 (14) | ||
| Friend %(n) | 3(3) | ||
| Clinical characteristics | |||
| Disease type, AML %(n) | 61 (68) | ||
| ALL %(n) | 7(8) | ||
| MDS %(n) | 16(18) | ||
| Other %(n) | 15 (17) | ||
| Type of Donor, MUD %(n) | 51 (57) | ||
| Sibling %(n) | 37 (41) | ||
| Haploidentical %(n) | 11 (12) | ||
| Cord %(n) | 1 (1) | ||
| Health-related characteristics, M (SD) | |||
| Perceived physical functioning | 37.69 (9.8) | 50.68 (9.3) | 10.078***,<.001 |
| Brief Charlson Comorbidityd | 0.97 (1.3) | 0.50 (0.9) | 3.090**, .003 |
| Psychosocial characteristics, M, range, (SD) | |||
| Perceived disease threat | 4.32 (0.7) | 4.37 (0.6) | −0.540, .590 |
| Perceptions of patient’s control over transplant and long-term course of cancer | 3.11 (0.9) | 3.17 (0.9) | −0.438, .662 |
| Relationship quality | 4.43 (0.5) | 4.27 (0.5) | 2.908**, .004 |
| Cancer treatment related distresse | 1.25 (0.6) | 1.13 (0.5) | N/Ac |
| Self-efficacy | 3.27 (0.4) | 3.21 (0.3) | 0.870, .386 |
a
χ2 for nominal variables and paired t tests for continuous variables
b
no test statistic is reported because Fishers exact test p value is reported; all 5 African American patients had African American caregivers
c
n may not total group number as some demographic data missing
d
Patients’ mean score including cancer condition related to the transplant was 2.96; t=17.891; p<.001
e
patient and caregiver versions of this scale are not comparable
*p<.05
**
p<.01
***
p<.001
AML = Acute Myelogenous Leukemia; ALL = Acute Lymphocytic Leukemia; MDS = Myelodysplastic Syndrome; MUD = Matched Unrelated Donor