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. Author manuscript; available in PMC: 2019 Aug 1.
Published in final edited form as: Support Care Cancer. 2018 Jul 19;27(2):609–616. doi: 10.1007/s00520-018-4355-2

Table 1.

Interview Guide and Exemplary Questions

Interview Guide Exemplary Questions
1-week post-discharge
  1. What do you know now that you wished you knew when your loved one was discharged/when you returned home?

  2. What challenges in caring for your [relative/friend] have you experienced since returning home from the hospital?

  3. What could have been explained or provided to you before your [relative/friend] was discharged that would have helped you manage these challenges when you returned home?

  4. What have you learned that might help other caregivers caring for their loved one within that first week of coming home from the hospital?

2-weeks post-discharge
  1. How have you and your [relative/friend] been since I saw you last week? Tell me about what this week has been like for you and your [relative/friend].

  2. Has anything changed since we last spoke in regard to …

  3. Have some things become easier in caring for your [relative/friend] this week?

    1. If yes, what?

    2. Why was it easier?

  4. Was anything harder in caring for your [relative/friend] this week?

    1. If yes, what?

    2. Why was it harder, what exactly about that was harder?