Table 2.

Item descriptive statistics.

Item	Minimum score	Maximum score	Mean (SD)
1. In the past 4 weeks, how much did you worry that your mycosis fungoides or Sézary syndrome may get worse?	1	5	2.74 (1.26)
2. In the past 4 weeks, how often did you feel hopeless because of having mycosis fungoides or Sézary syndrome?	1	5	2.01 (1.13)
3. In the past 4 weeks, how frustrated were you by the unpredictability of mycosis fungoides or Sézary syndrome?	1	5	2.67 (1.36)
4. In the past 4 weeks, how often did you feel depressed or sad because of mycosis fungoides or Sézary syndrome?	1	5	2.15 (1.03)
5. In the past 4 weeks, how confident did you feel about managing your mycosis fungoides or Sézary syndrome?	1	5	2.94 (1.11)
6. In the past 4 weeks, to what extent were you able to cope with the daily demands (symptom impact and management, treatment, side effects, appointments, etc) of mycosis fungoides or Sézary syndrome?	1	5	3.47 (1.27)
7. In the past 4 weeks, how severe were your mycosis fungoides or Sézary syndrome symptoms?	1	5	1.95 (1.05)
8. In the past 4 weeks, how burdensome was your mycosis fungoides or Sézary syndrome treatment?	1	5	2.20 (1.02)
9. In the past 4 weeks, how much did your mycosis fungoides or Sézary syndrome limit your daily activities (work inside and outside of the house, self-care such as cooking, cleaning, getting dressed, etc)?	1	5	1.79 (1.25)
10. In the past 4 weeks, how much did mycosis fungoides or Sézary syndrome limit your ability to wear clothes you wanted to?	1	5	2.28 (1.49)
11. In the past 4 weeks, how often did mycosis fungoides or Sézary syndrome (the condition or associated treatment) leave you too tired to work or do daily activities?	1	5	2.11 (1.20)
12. In the past 4 weeks, how much did mycosis fungoides or Sézary syndrome negatively affect your relationships with others close to you?	1	5	1.73 (1.10)
13. In the past 4 weeks, how often did you feel that others do not understand what you are going through with mycosis fungoides or Sézary syndrome?	1	5	2.67 (1.33)
14. In the past 4 weeks, to what extent did mycosis fungoides or Sézary syndrome make you feel uncomfortable being around people other than close family and friends?	1	5	1.94 (1.20)