Table 5.
Spontaneous vs probed impact expressions during the CE portion of the interviews
| Symptom Reported, n (%) | Participants, N = 20 | |||
|---|---|---|---|---|
| Spontaneous | Probed | Not Affected | Not Reported | |
| Emotional functioning | ||||
| Anxiety | 7 (35) | 2 (10) | 3 (15) | 8 (40) |
| Embarrassment | 5 (25) | 1 (5) | 3 (15) | 11 (55) |
| Depression | 4 (20) | 1 (5) | 3 (15) | 12 (60) |
| Worry | 3 (15) | 5 (25) | 3 (15) | 9 (45) |
| Anger | 2 (10) | 2 (10) | 3 (15) | 13 (65) |
| Frustration | 2 (10) | 5 (25) | 3 (15) | 10 (50) |
| Stress | 2 (10) | 4 (20) | 3 (15) | 11 (55) |
| Guilt | 1 (5) | 3 (15) | 3 (15) | 13 (65) |
| Othera | 1 (5) | – | – | 19 (95) |
| Changes in daily performance | ||||
| Work | 13 (65) | 2 (10) | 3 (15) | 2 (10) |
| General functioning/daily routine | 4 (20) | 5 (25) | 3 (15) | 8 (40) |
| Housework/chores | 4 (20) | 5 (25) | 3 (15) | 8 (40) |
| Needs to pace self | 3 (15) | 11 (55) | 6 (30) | – |
| Takes longer than usual to recover | 3 (15) | 14 (70) | 2 (10) | 1 (5) |
| Takes longer than usual to complete tasks | 2 (10) | 13 (65) | 5 (25) | – |
| Need to force self | 1 (5) | 12 (60) | 7 (35) | – |
| Otherb | 1 (5) | – | 3 (15) | 16 (80) |
| Limitations to lifestyle and activities | ||||
| Changes to diet | 12 (60) | 3 (15) | 4 (20) | 1 (5) |
| Changes to alcohol consumption | 7 (35) | 6 (30) | 6 (30) | 1 (5) |
| Exercise/sports | 5 (25) | 5 (25) | 6 (30) | 4 (20) |
| Travel | 5 (25) | 2 (10) | 6 (30) | 7 (35) |
| Unable to plan things in advance | 4 (20) | 6 (30) | 9 (45) | 1 (5) |
| Clothing restrictions | 2 (10) | – | – | 18 (90) |
| Otherc | – | 1 (5) | – | 19 (95) |
| Limitations to social functioning | ||||
| Social activities limited | 8 (40) | 6 (30) | 6 (30) | – |
| Family relations affected | 6 (30) | 4 (20) | 9 (45) | 1 (5) |
| Friends relations affected | 5 (25) | 2 (10) | 8 (40) | 5 (25) |
| Relationships with partner affected | 3 (15) | 3 (15) | 8 (40) | 6 (30) |
| Workplace relations affected | 2 (10) | 2 (10) | 8 (40) | 8 (40) |
| Otherd | 1 (5) | – | – | 19 (95) |
| Less interest in sex | – | 5 (25) | 14 (70) | 1 (5) |
| Sexual function issues | – | 3 (15) | 14 (70) | 3 (15) |
| Sleep difficulties caused by itching or other symptoms | ||||
| Difficulty staying asleep | 13 (65) | 3 (15) | 4 (20) | – |
| Difficulty falling asleep | 7 (35) | – | 4 (20) | 9 (45) |
| Needs to take naps | 3 (15) | 7 (35) | 10 (50) | – |
| Reduced sleep quality | 3 (15) | 1 (5) | 4 (20) | 12 (60) |
| Wakes up too early | 3 (15) | 2 (10) | 4 (20) | 11 (55) |
| Goes to bed early | – | 10 (50) | 10 (50) | – |
| Additional impacts | ||||
| Scratching until skin is raw/infected | 11 (55) | 7 (35) | 2 (10) | – |
| Decreased quality of life | 3 (15) | 12 (60) | 5 (25) | – |
| Economic burden | 2 (10) | 6 (30) | 11 (55) | 1 (5) |
| Treatment burden | 2 (10) | 1 (5) | – | 17 (85) |
CE, concept elicitation
aConcern about having children
bSchool
cGardening
dSocial stigma