Table 1.

XP patient support groups

Country/location	XP patient support group	Website
United States	XP Family Support Group	http://www.xpfamilysupport.org
United States	XP Society	http://www.xps.org
North America	XP Grupo Luz De Esperanza (in Spanish)	http://www.xpgrupoluzdeesperanza.org
Great Britain	XP Support Group	xpsupportgroup.org.uk
France	Les Enfantes De La Lune	asso.orpha.net/AXP/debut.htm
Germany	Xeroderma pigmentosum	http://www.xerodermapigmentosum.de/
Tunisia	Association d’aide aux Enfants Atteints de Xeroderma Pigmentosum	http://www.xp-tunisie.org.tn
Japan	Japanese National Network of Xeroderma Pigmentosum	http://www.xp-japan.net
Turkey	Xeroderma Xpturkiye	None
South Africa	Xeroderma Society South Africa	Website in construction