Table 2.

UV safe living

Environmental factors
UV meters:	Assess ambient levels of environmental UV to assure safe levels
Limitation of outdoor activities:	Remaining indoors or heavily covered outside; when sun is above horizon
Use of low UV lighting	Shield florescent, incandescent or LED bulbs
UV-blocking films for windows:	Apply films to windows in homes, cars, schools, work places. Any indoor areas where XP patients will be spending extended periods of time.
Clothing
Styles:	Long, pants and long sleeved shirts, tights or leggings; double layers of clothing provide better protection
Fabric types:	Dense dark tightly woven fabrics - denim; polyesters and rayon; Specially manufactured UV blocking clothing
Hats, hoods, sunglasses	Hats wide brimmed made from UV blocking cloth; hoods with clear plastic face shields, UVA and UVB blocking sunglasses
Other clothing	Closed toed shoes, socks, gloves
Sunscreen
UVA and UVB blocking	Easy to apply, comfortable to wear not expensive and acceptable to the patient for daily use
Lifestyle factors
Social support	XP support groups, schools, social service agencies, religious agencies
Ongoing environmental assessment	Using UV meters to determine safe areas in new environments such as schools, medical facilities, work places, stores
Living an active life style	Handicapped parking placards, medic alert bracelets, indoor career planning