Table VI.

Suggestions for Targeted Psychosocial History/Assessment

Level of education

Possible barriers to communication, including cultural/language diversity or the presence of learning disabilities

Current level of knowledge regarding diagnosis of NF1

Family’s understanding and perception of medical information

Previous experiences with NF1, if any

Family’s perception of the etiology of NF1

Emotional reaction to the diagnosis of NF1

Family structure and functioning

Family and community support systems

Coping skills

Meaning of a genetic diagnosis for the family, including implications for family planning and parenting