Table 3.
SCARED Frequency and Distress Scores
| SCARED Frequency and Distress scores (n = 103) | Never (frequency score = 0) | Once/Twice (frequency score = 1) (%) |
Weekly (frequency score = 2) (%) |
Daily (frequency score = 3) (%) |
Mean Fear score (SD) |
Mean Helplessness score (SD) |
|||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| severe pain/discomfort | 3 | 24 | (22.6) | 37 | (34.9) | 40 | (37.7) | 1.15 | (.70) | 1.38 | (.66) |
| unable to eat or swallow/choking | 59 | 20 | (18.9) | 12 | (11.3) | 13 | (12.3) | 1.33 | (.56) | 1.20 | (.76) |
| vomiting | 56 | 27 | (25.5) | 18 | (17.0) | 3 | (2.8) | 1.19 | (.70) | 1.33 | (.66) |
| dehydration | 75 | 17 | (16.0) | 2 | (1.9) | 10 | (9.4) | 1.17 | (.85) | .83 | (.71) |
| insomnia | 48 | 40 | (37.7) | 6 | (5.7) | 10 | (9.4) | .66 | (.67) | .71 | (.76) |
| falling. Collapsing. passing-out | 58 | 34 | (32.1) | 12 | (11.3) | – | – | 1.22 | (.51) | 1.30 | (.66) |
| confusion. Delirium | 49 | 23 | (21.7) | 24 | (22.6) | 8 | (7.5) | 1.44 | (.66) | 1.40 | (.71) |
| other events | 79 | 5 | (4.7) | 5 | (4.7) | 11 | (10.4) | .33 | (.48) | .67 | (.86) |
| family caregiver felt patient “had enough” | 47 | 37 | (34.9) | 17 | (16.0) | 3 | (2.8) | 1.68 | (.47) | 1.63 | (.56) |
| family caregiver thought patient was dead | 81 | 18 | (17.0) | 4 | (3.8) | – | – | 1.59 | (.80) | 1.45 | (.86) |
Mean fear score (range 0–6): frequency of event × fear score (0 = not frightened, 1 = somewhat frightened, 2 = very frightened) among those who have a reported frequency > 0
Mean helplessness score (range 0–6): frequency of event × helplessness score (0 = not helpless, 1 = somewhat helpless, 2 = very helpless) among those who have a reported frequency > 0