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. Author manuscript; available in PMC: 2020 Feb 1.
Published in final edited form as: J Pain Symptom Manage. 2018 Nov 17;57(2):199–208.e2. doi: 10.1016/j.jpainsymman.2018.11.004

Table 2.

Characteristics of caregivers assisting community-living older adults receiving help with self-care and indoor mobility from a family/unpaid caregiver, stratified by caregiver-associated strain

Caregiver characteristic Full sample
(N=3422)
Low or
moderate strain
n=2702)
High strain
(n=720)
Column
percentages
 Row percentages
Age [mean (95% CI)] 62.8 (62.1, 63.5) 63.0 (62.6, 63.4) 61.9 (61.2, 62.6)  0.11
Sex
 Male 35.8% 89.5% 10.5% p<0.001
 Female 64.2% 78.2% 21.8%
Relationship to OA
 Spouse 44.6% 82.6% 17.4% p<0.001
 Child 39.3% 79.4% 20.6%
 Other 16.1% 88.1% 11.9%
Distance to Older Adult
 Coreside 75.9% 81.4% 18.6% p=0.10
 Less than 10 minutes 14.5% 84.7% 15.3%
 More than 10 minutes 9.6% 85.1% 14.9%
Self-rated health
 Excellent or good 73.7% 86.3% 13.7% p<0.001
 Fair or poor 26.3% 70.8% 29.2%
Employed for pay
 No 71.1% 83.0% 17.0% p=0.17
 Yes 28.9% 80.5% 19.5%
Respite use
 No 86.3% 83.7% 16.3% p<0.001
 Yes 13.7% 73.1% 26.9%
Hours per week of care
provided [mean (95%
CI)]
32.6 (30.8, 34.4) 28.8 (27.8, 29.8) 49.9 (47.8, 52.0) p<0.001

Data drawn from National Long-Term Care Survey / Informal Care Survey data from 1999 (n= 791 dyads) and 2004 (n=1149 dyads), and National Health and Aging Trends Study / National Survey of Caregiving from 2011 (n= 736 dyads) and 2015 (n= 746 dyads). Data was weighted using NLTCS and NHATS weights as described in prior work (30). Statistical significance was assessed using chi-squared tests for categorical variables and t-tests for continuous variables.

High caregiving-associated strain was defined on the basis of a cut-point of 5 or greater on a scale of 0–9 based on six elements: caregiver appraisal of the difficulty of helping in three domains – emotional (0 = no difficulty; 1 = some difficulty; 2 = a lot of difficulty), physical (0–2), and financial (0–2) – as well as having no time for oneself (0 = false; 1 = true), being overwhelmed (0 or 1), and being exhausted (0 or 1).