Table I:
Patient Demographics
| Total patients with CPS | Number | Percentage (%) |
|---|---|---|
| 73 | ||
| Age at survey completion | ||
| 0–6 | 42 | 57.6 |
| 7–12 | 22 | 30.1 |
| 13–18 | 9 | 12.3 |
| Gender | ||
| Male | 43 | 58.9 |
| Female | 30 | 41.1 |
| Ethnicity | ||
| Caucasian | 59 | 80.8 |
| African American | 13 | 17.8 |
| Other | 1 | 1.40 |
| Diagnosis | ||
| IHH* | 23 | 31.5 |
| BWS | 14 | 19.2 |
| Pleuropulmonary Blastoma | 8 | 11 |
| Personal and Significant Family History of Malignancy | 6 | 8.22 |
| Retinoblastoma | 6 | 8.22 |
| Von Hippel-Lindau | 4 | 5.48 |
| Peutz-Jeghers | 2 | 2.74 |
| Hereditary Neuroblastoma | 2 | 2.74 |
| Cowden | 1 | 1.37 |
| Familial Adenomatous Polyposis | 1 | 1.37 |
| Gorlin | 1 | 1.37 |
| Wilms-related | 1 | 1.37 |
| Lynch syndrome | 1 | 1.37 |
| Bannayan-Riley-Ruvalcaba | 1 | 1.37 |
| Noonan syndrome | 1 | 1.37 |
| PI3CKD disorder | 1 | 1.37 |
*
IHH: Isolated Hemihyperplasia