Table 1.
Socio-demographics for adult participants with sickle cell disease.
| Variable | Adults (N = 201) |
Childrena (N = 330) |
Combined (N = 531) |
|
|---|---|---|---|---|
| Age | Years (SD, Range) | 26.0 (22.0–35.0) | 10.0 (6.0–14.0) | 14.0 (8.0–24.0) |
| Sex | Male | 85 (40.3%) | 160 (48.3%) | 245 (45.2%) |
| Female | 116 (55.0%) | 170 (51.4%) | 286 (52.8%) | |
| Race/Ethnicity | Black, African American, African, or Afro-Caribbean | 193 (91.5%) | 323 (97.6%) | 516 (95.2%) |
| Hispanic, Latino, or Spanish origin | 5 (2.4%) | 5 (1.5%) | 10 (1.8%) | |
| Some other race or origin | 10 (4.7%) | 9 (2.7%) | 19 (3.5%) | |
| Highest degree or level of school completed | High school graduate or less | 85 (40.3%) | 133 (40.2%) | 218 (40.2%) |
| Some college or beyond | 112 (53.1%) | 126 (38.1%) | 238 (43.9%) | |
| Household size | Median (Range) | 4 (1–14) | 3 (1–8) | 4 (1–14) |
| Marital status | Married/Living together | 50 (23.7%) | 110 (33.2%) | 160 (29.5%) |
| Unmarried | 151 (71.6%) | 220 (66.5%) | 371 (68.5%) | |
| Spirituality/Religiosity | Very | 75 (35.5%) | 151 (45.6%) | 226 (41.7%) |
| Fairly | 87 (41.2%) | 102 (30.8%) | 189 (34.9%) | |
| Slightly/Not at All | 39 (18.5%) | 60 (18.1%) | 99 (18.3%) | |
| Difficulty paying monthly bills | Not very/Not at all | 114 (54.0%) | 176 (53.2%) | 290 (53.5%) |
| Somewhat/Very | 87 (41.2%) | 154 (46.5%) | 241 (44.5%) | |
| Site | Midwest region: | |||
| Cincinnati | 11 (5.2%) | 40 (12.1%) | 51 (9.4%) | |
| Chicago | 17 (8.1%) | 84 (25.4%) | 101 (18.6%) | |
| Western region: | ||||
| Oakland | 44 (20.9%) | 0 (0.0%) | 44 (8.1%) | |
| Mid-South region: | ||||
| St. Jude | 6 (2.8%) | 155 (46.8%) | 161 (29.7%) | |
| UTHSCc | 40 (19.0%) | 0 (0.0%) | 40 (7.4%) | |
| Vanderbilt | 83 (39.3%) | 51 (15.4%) | 134 (24.7%) | |
a
Caregivers were asked to report for their children under 18 years.
b
Percentages may not add up to 100% because of missing data.
c
UTHSC = University of Tennessee Health Science Center.