1 |
Information about condition(s) and/or management
Information about symptoms, condition(s) including prognosis, and interventions (eg medication, emotional and psychosocial) to people with LTCs and their families |
2 |
Information about available resources
Information about financial benefits, social, community or peer support, and charitable organizations or health support organizations for people with LTCs and their families |
3 |
Provision of/agreement on specific clinical action plans and/or rescue medication
Written instructions prepared with a health professional to enable people with LTCs and their families to take an approach tailored to the person, condition(s), and severity. This includes taking medication, and recognizing symptom deterioration and taking action |
4 |
Regular clinical review
A regular scheduled review with a health professional about symptom and condition management, and the support needed to self‐manage |
5 |
Monitoring of condition with feedback
The person with the LTCs and their family, or health professional, monitor symptoms, behaviours or objective measures related to the LTCs. The person has access to their results. Interpretation, decisions and actions may be supported by a health professional |
6 |
Practical support with adherence (medication or behavioural)
Practical help offered to support adherence to medication or change at‐risk behaviour |
7 |
Provision of equipment
Provision of equipment to enable self‐monitoring and/or self‐management of the LTC |
8 |
Provision of easy access to advice or support when needed
Timely access to health services delivered flexibly when presenting with an urgent or a non‐urgent |
9 |
Training/rehearsal to communicate with health‐care professionals
Teaching people with LTCs to develop communication skills to improve relationships, better communicate their needs, and enhance shared decision making with health‐care professionals. Supporting people to practise skills they have been taught |
10 |
Training/rehearsal for everyday activities
Teaching people with LTCs to develop skills that support everyday activities. Supporting people to practice skills they have been taught |
11 |
Training/rehearsal for practical self‐management activities
Teaching people with LTCs to develop specific practical skills that will enable them to manage their LTC. Supporting people to practise the skills they have been taught |
12 |
Training/rehearsal for psychological strategies
Teaching people with LTCs skills to use psychological strategies to better manage the consequences of LTCs. Supporting people to practice the skills they have been taught, such as, problem‐solving, relaxation techniques, re‐framing, distraction, cognitive restructuring, goal setting and action planning |
13 |
Social support
Facilitation of social support to extend care. Includes peer support, social or community networks, charitable organizations and health support organizations |
14 |
Lifestyle advice and support
Practical general advice and support about health and lifestyle (eg physical activity, smoking cessation, diet and alcohol consumption). Not psychological strategies (see 12) |
LTC = long‐term condition; components 9‐11 not found in our patient data.)