Table 1.

Research stages of patient and public involvement

Research stage	Subcategories	Definition
1. Development of research focus	Research definition	Definition of research themes/questions
	Research prioritization	Prioritization of research themes/questions
2. Development of research design	Method development	Development of research tools, for example, questionnaires, interview guides, patient‐reported outcome measurements
	Study design development	Development of entire study designs
3. Recruitment	Recruitment strategy	Development of recruitment/retention strategies for research projects
	Recruitment	Participation in recruiting research participants
4. Data generation	Data generation	Participation in data generation, for example, interviewing
5. Data processing	Analysis	Participation in data analysis
6. Research dissemination	Dissemination	Dissemination of research, for example, co‐author/presenter
	Dissemination strategy	Development of dissemination strategies