Table 1.

Improved detection and diagnosis

A: Red reflex screening test
She’s been a midwife for ages, and because of that experience, she picked up it. (Lily’s mother)	We were pretty angry at our midwife because we felt that she should have picked that up. (Jack’s mother)
B: Referrals and process
We got sent to a follow up…to test the red eye reflex in the left eye and basically look in detail because they were expecting the possibility of a cataract. So it was diagnosed pretty much right from the start, she would have been about two days old when it was found and diagnosed. (Olivia’s mother)	She [Allied medical worker] put him on a wait list and it took until about 15 months, it was a long time, so I was thinking I guess it’s not a big deal. …when we saw [ophthalmologist] he basically outlined right from the beginning that there was no hope. I found it … sorry … there is still a bit of anger there. (Riley’s mother)

Examples of positive (left column) and negative (right column) experiences relating to timing of diagnosis.