Table 1.
Participant characteristics (n = 35)
| Diagnosis (patient identification) | Patients (relatives),an | Females, n | Males, n | Age, years | Duration of appraisal and help-seeking interval, monthsb,c | Duration of diagnostic interval, monthsc,d |
|---|---|---|---|---|---|---|
| Median (range) | Median (range) | Median (range) | ||||
| Non-Hodgkin lymphoma | ||||||
| Diffuse large B-cell (P2, 4, 8, 9, 20, 21, 24, 27, 29, 31, 32, 35) |
12 (7) | 5 | 7 | 64 (48–81) | 1 (0.5–13) | 2.5 (1–14) |
| Follicular (P1, 3, 6, 10, 12, 13, 18, 22, 26) |
9 (2) | 4 | 5 | 63 (39–84) | 1 (0.5–12) | 3 (1.5–15) |
| Marginal zone (P5, 16, 25, 28, 30, 33) |
6 (1) | 4 | 2 | 62 (57–76) | 1 (0.5–10) | 12 (3–25) |
| Mantle cell (P11, 15, 34) |
3 (3) | 2 | 1 | 71 (70–75) | 1 (1–6) | 2 (2–10) |
|
Hodgkin lymphoma (P7, 14, 17, 19, 23) |
5 (2) | 2 | 3 | 36 (23–56) | 0.5 (0.5–2) | 5 (3–24) |
| Total | 35 (15) | 17 | 18 | 63 (23–84) | 1 (0.5–13) | 4 (1–24) |
a
All were spouses and/or partners of the interviewee with lymphoma.
b
First symptom to first help seeking.
c
Estimate based on information provided by patients in the routine Haematological Malignancy Research Network (HMRN) questionnaire about symptoms and help seeking.
d
First help seeking to diagnosis. P = participant.