| Health status |
Describe your health today. Has there been a period since your injury that you noticed a dramatic shift in your health? Describe your diet. How has it changed in the last 5 years? How has your physical and mental health status changed over the past 5 to 10 years? Did you have preexisting conditions before your injury? How has your SCI affected this condition(s)? How many times have you been hospitalized in the past 5 years? Describe how you take care of your skin on a daily basis. Has this changed in the last 5 years? Have you had to seek medical attention for your skin? |
| Health services |
Tell me about the health services you receive. Which health care professionals are on your current professional team?
Which have you seen regularly? Have those professionals changed in the past 5 years?
Do you attend the follow-up clinic at Magee Rehab? If not, describe why you do not use the clinic.
What health care services do you seek outside of your home?
Which do you receive in your home? Are there any other modes of communication that you use to contact your health care team, such as telephone, telecare, email?
Over the years, have you noticed a change in the services that are covered by insurance? How do you feel about that?
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| Energy |
Describe your energy level today.
Is it the same day to day? How does it change throughout the day?
The literature states that fatigue is one of the most common symptoms reported for people aging with spinal cord injuries. How has your level of energy changed over the past 5 years? Describe how you have had to change your activities because of your energy level in the last 5 years. |
| Activity and participation |
What types of activities do you participate in? How has your SCI affected your participation in activities outside of the home in the last 5 years? Describe your exercise routine. Has it changed over the past 5 years? How do you get around? Describe any changes in your level of independence with any ADLs? Has your ability to transfer changed in the past 5 years? (If yes, describe the changes.) Are you working? Describe any changes you've needed to make in the workplace, or with the work tasks you do. |
| Minimal significant change |
Are there any small significant changes in your functional status that you have experienced in the last 5 years that you would like us to be aware of? Describe how you think rehabilitation can better serve your needs as you age with SCI. |
| Social |
Who are the important people in your life? What are some key influences they have had on your life in the past 5 years? Since your injury?
Who do you interact with socially? Where do you socialize?
How have your social interactions with family and friends changed? How have your supports changed over the years? Describe the quality of your life in the past 5 years.
What makes you happy? What makes you feel good? What makes you feel bad?
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| Mentorship |
Over the years have you found yourself seeking out others with SCI for support? The literature talks about mentorship. Did you have a mentor who worked with you after your injury? How did that experience impact you?
Did you/Are you mentoring someone with an SCI?
Why did/didn't you do it? What was that experience like? What are the benefits of being a mentor?
Now that you are older, how can you benefit from a mentor? |
| Participant needs |
Are you the primary caregiver for _________? How long have you been providing this care? What type of assistance do you provide (transfers, ADLs, bowel/bladder, shopping, finances, etc)? Over the last 5 years, what services, assistance, or assistive devices have you needed to help you with your caregiving? Describe how you got these services (social support, professional services, assistance for everyday living, paramedic services, lifts, wheelchair, etc).
Describe ______________'s health today. Over the past 5 years what changes have you noticed in health insurance coverage? Over the past 5 years what changes have you noticed in ____________'s energy level? Over the past 5 years what changes have you noticed in __________'s independence level? Over the past 5 years what changes have you noticed in __________'s activity participation? Over the past 5 years what changes have you noticed in the number of caretaking hours? Describe how you think rehabilitation should change to better serve the needs of those who are aging with SCI. Describe any other small but significant changes in __________'s ability to participate in activity. |
| Caregiver needs |
Describe your health today. Over the last 5 years what services have you sought out for your own health? Describe how you got these services (psychological support for stress, depression, life satisfaction, or QOL).
What are your concerns regarding the next 10 years? |
