Table 1.
Demographics and medical information for participants at three study time points, pre-intervention, post-intervention, and 6+ months post-intervention.
| Category | Pre-intervention Completers | Post-intervention Completers | 6-month study completers |
|---|---|---|---|
| (n = 101) | (n = 78) | (n = 37) | |
| No. (% of total) | No. (% of total) | No. (% of total) | |
| Age at prestudy, y | |||
| 18–24 | 24 (23.8) | 15 (19.2) | 7 (18.9) |
| 25–29 | 32 (31.7) | 29 (37.2) | 11 (29.7) |
| 30–34 | 28 (27.7) | 21 (26.9) | 12 (32.4) |
| 35–39 | 12 (11.9) | 10 (12.8) | 5 (13.5) |
| 40–45 | 5 (5.0) | 3 (3.8) | 2 (5.4) |
| Sex | |||
| Male | 18 (17.8) | 15 (19.2) | 7 (18.9) |
| Female | 83 (82.2) | 63 (80.8) | 30 (81.1) |
| Marital status | |||
| Single, never married | 33 (32.7) | 22 (28.2) | 14 (37.8) |
| Divorced | 3 (3.0) | 3 (3.8) | 0 (0) |
| Partnered | 65 (64.4) | 53 (67.9) | 23 (62.2) |
| 1st language | |||
| English | 92 (91.1) | 71 (91.0) | 32 (86.5) |
| Income (n = 77) | |||
| Less than $20, 000 | 11 (11.2) | 8 (10.4) | 5 (13.5) |
| $20,000 to $39,999 | 6 (6.1) | 3 (3.9) | 1 (2.7) |
| $40,000 to $69,999 | 25 (25.5) | 23 (29.9) | 11 (29.7) |
| $70,000 to $99,999 | 53 (54.1) | 41 (53.2) | 20 (54.1) |
| $100,000 or more | 3 (3.1) | 2 (2.6) | 0 (0) |
| Education | |||
| Grade 12 | 10 (9.9) | 9 (11.5) | 4 (10.8) |
| Some postsecondary | 22 (21.8) | 15 (19.2) | 4 (10.8) |
| Bachelor׳s degree | 33 (32.7) | 28 (35.9) | 17 (45.9) |
| Graduate degree | 21 (20.8) | 14 (17.9) | 9 (24.3) |
| Technical/trade school degree | 15 (14.9) | 12 (15.4) | 3 (8.1) |
| Employment | |||
| Unemployed | 9 (8.9) | 8 (10.3) | 4 (10.8) |
| Part-time | 22 (21.8) | 15 (19.2) | 11 (29.7) |
| Full-time | 63 (62.4) | 49 (62.8) | 20 (54.1) |
| Stay-at-home mom | 7 (6.9) | 6 (7.7) | 2 (5.4) |
| Type of IBD | |||
| Crohn׳s disease | 69 (68.3) | 54 (69.2) | 25 (67.6) |
| Ulcerative colitis | 29 (28.7) | 21 (26.9) | 10 (27) |
| Indeterminate | 3 (3.0) | 3 (3.8) | 2 (5.4) |
| Reproductive history | |||
| Have biological children | 26 (25.7) | 19 (24.4) | 8 (21.6) |
| Currently pregnant | 11 (10.9) | 5 (6.4) | 1 (2.7) |
| Ever been pregnant | 27 (26.7) | 19 (24.4) | 9 (24.3) |
| Medication history | |||
| Sulfasalazine | 12 (11.9) | 10 (12.8) | 6 (16.2) |
| Mesalamine/5-ASA | 83 (82.2) | 67 (85.9) | 31 (83.8) |
| Budesonide | 20 (19.8) | 17 (21.8) | 8 (21.6) |
| Steroids | 82 (81.2) | 63 (80.8) | 31 (83.8) |
| Methotrexate | 15 (14.9) | 12 (15.4) | 9 (24.3) |
| Azathioprine/mercaptopurine | 72 (71.3) | 55 (70.5) | 27 (73) |
| Anti-TNF/biologics | 54 (53.5) | 42 (53.8) | 22 (59.5) |
| Antibiotics | 50 (49.5) | 38 (48.7) | 18 (48.6) |
| Study medications | 10 (9.9) | 8 (10.3) | 4 (10.8) |
| Saw IBD specialist in outpatient gastroenterology clinic in the past year | |||
| Yes | 84 (84.0) | 67 (85.9) | 33 (89.2) |
| No | 16 (16.0) | 11 (14.1) | 4 (10.8) |
| Hospitalized for IBD in the past year | |||
| Yes | 22 (22.) | 16 (20.5) | 4 (10.8) |
| No | 78 (78.0) | 62 (79.5) | 33 (89.2) |
| Discussed pregnancy in IBD topics with: | |||
| Gastroenterologist | 46 (45.5) | 36 (46.2) | 19 (51.4) |
| General medicine specialist | 2 (2.0) | 2 (2.6) | 0 (0) |
| Gynecologist/obstetrician | 17 (16.8) | 12 (15.4) | 7 (18.9) |
| Family physician | 22 (21.8) | 18 (23.1) | 7 (18.9) |
| IBD nurse | 16 (15.8) | 11 (14.1) | 4 (10.8) |
| Pharmacist | 1 (1.0) | 1 (1.3) | 0 (0.0) |
| Family and friends | 36 (35.6) | 29 (37.2) | 12 (35.1) |
| Support groups | 2 (2.0) | 2 (2.6) | 1 (2.7) |
| Obtained information regarding pregnancy in IBD from: | |||
| Internet | 52 (51.5) | 42 (53.8) | 22 (59.5) |
| Pamphlets and brochures | 18 (17.8) | 14 (17.9) | 7 (18.9) |
| Books | 6 (5.9) | 4 (5.1) | 1 (2.7) |
| Baseline CCPKnow level | |||
| Poor (0–7) | 49 (48.5) | 37 (47.4) | 16 (43.2) |
| Adequate (8–10) | 27 (26.7) | 22 (28.2) | 9 (24.3) |
| Good (11–13) | 15 (14.9) | 13 (16.7) | 8 (21.6) |
| Very good (14–17) | 10 (9.9) | 6 (7.7) | 4 (10.8) |
| Baseline CCPKnow—dichotomized | |||
| Poor (0–7) | 49 (49.5) | 37 (47.4) | 16 (43.2) |
| Adequate+ (>7) | 52 (51.5) | 41 (52.6) | 21 (56.8) |