Table 1.

Summary of topic-guide (see supplementary material B for full patient and carer topic-guides).

Experience of illness • Recent and longer term illness context • Main limitations on health

Experience of care • Experience in each recent care setting

Care preferences • How do you make choices about your health • What is important with regards your health and care • How do you decide what is important • Does this change over time, what makes it change

Ideas about the future • How do you see your health changing • Future care preferences