Table 3.

Survey questions and response options.

Question	Reply options
Gender?	M/F
Year of birth?	Numeric
County council of residence?	Dropdown of all Swedish county councils
Highest completed education?	Compulsory school (<9 years)
	Upper secondary school (9–12 years)
	University (>12 years)
Year of diagnosis?	Numeric
How important is knowledge about your disease to you?	Scale from 1 to 5 where 1 = unimportant, 5 = very important
Which of these is your main source of knowledge about your disease? Pick one.	Healthcare
	Patient organisations and similar
	Found myself online
	Other patients
	Family, relatives and friends
	Other sources
Have you been able to acquire the knowledge you need about your disease?	Scale from 1 to 5 where 1 = not at all, 5 = absolutely
How many times did you see your neurologist during 2014?	None
	Once
	Twice
	Three times
	Four times or more
	I do not have a neurologist
Non-mandatory comment about visits to the neurologist	Free text
How long is each visit on average? Pick the time closest to the actual time.	About 15 min
	About 30 min
	About 45 min
	An hour or more
Do you also have regular contacts with other healthcare professionals, for example, nurse, speech therapist, physical therapist, social worker?	Yes
	No
	I do not know
Total time spent in healthcare for PD during 2014 (neurologist visits excluded)	Up to 5 h
	Between 5 and 10 h
	Between 10 and 20 h
	More than 20 h
Non-mandatory comment about your other healthcare contacts	Free text
Do you think your time with the neurologist is sufficient?	Scale from 1 to 5 where 1 = not at all, 5 = absolutely
Non-mandatory comment about the time spent with the neurologist	Free text