Gender? |
M/F |
Year of birth? |
Numeric |
County council of residence? |
Dropdown of all Swedish county councils |
Highest completed education? |
Compulsory school (<9 years) |
|
Upper secondary school (9–12 years) |
|
University (>12 years) |
Year of diagnosis? |
Numeric |
How important is knowledge about your disease to you? |
Scale from 1 to 5 where 1 = unimportant, 5 = very important |
Which of these is your main source of knowledge about your disease? Pick one. |
Healthcare |
|
Patient organisations and similar |
|
Found myself online |
|
Other patients |
|
Family, relatives and friends |
|
Other sources |
Have you been able to acquire the knowledge you need about your disease? |
Scale from 1 to 5 where 1 = not at all, 5 = absolutely |
How many times did you see your neurologist during 2014? |
None |
|
Once |
|
Twice |
|
Three times |
|
Four times or more |
|
I do not have a neurologist |
Non-mandatory comment about visits to the neurologist |
Free text |
How long is each visit on average? Pick the time closest to the actual time. |
About 15 min |
|
About 30 min |
|
About 45 min |
|
An hour or more |
Do you also have regular contacts with other healthcare professionals, for example, nurse, speech therapist, physical therapist, social worker? |
Yes |
|
No |
|
I do not know |
Total time spent in healthcare for PD during 2014 (neurologist visits excluded) |
Up to 5 h |
|
Between 5 and 10 h |
|
Between 10 and 20 h |
|
More than 20 h |
Non-mandatory comment about your other healthcare contacts |
Free text |
Do you think your time with the neurologist is sufficient? |
Scale from 1 to 5 where 1 = not at all, 5 = absolutely |
Non-mandatory comment about the time spent with the neurologist |
Free text |