| Country of residence |
United Kingdom |
36 (38%) |
| United States of America |
27 (29%) |
| Europe (excluding UK) |
12 (13%) |
| Canada |
7 (7%) |
| Rest of world |
12 (13%) |
| Handedness |
Right-handed |
83 (88%) |
| Left or mixed-handed |
11 (12%) |
| Ethnicity |
White European or Hispanic |
84 (89%) |
| African or Afro-Caribbean |
4 (4%) |
| Asian |
3 (3.5%) |
| Other or no response |
3 (3.5%) |
| Highest level of education |
No formal education |
1 (1%) |
| High school |
23 (24.5%) |
| College or University |
53 (56.5%) |
| Postgraduate |
17 (18%) |
| History of regular smoking |
Yes |
30 (32%) |
| No |
64 (68%) |
| Basis of XLI carrier status |
Family history (i.e. multiple affected male relatives) and skin appearance alone |
59 (63%) |
| Family history, skin appearance and genetic/hormonal test |
35 (37%) |
| Test result for individuals undergoing genetic analysis |
Typical deletion or mutation within STS
|
15 (43%) |
| Atypical (large) deletion |
3 (8.5%) |
| Don’t know or no response |
17 (48.5%) |
