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. Author manuscript; available in PMC: 2020 Feb 1.
Published in final edited form as: Psychooncology. 2018 Dec 11;28(2):365–371. doi: 10.1002/pon.4950

Table 1.

Caregiver Communication About Cancer (app) Structure and Content

A Communication Guide for Caregivers©
Family Caregiver Communication Component* Section of App Content Description
Talking Tips Resources
  • Relationship with the care recipient
    • Communication with the care recipient
    • Understanding the care recipient
❖ Patient
  • How it feels to be a caregiver (e.g., body mind time, heart)

  • Considerations and examples for sharing information with the patient

  • Difficulty of discussions

  • How to handle disagreements

  • Meditation/relaxation audio clip

  • Patient heart, mind, and body wellness tracker.

  • Access to information
    • Proactivity and determination to seek information
    • Information presented in quality formats
❖ Caregiving
  • Customizable question and to do lists

  • Example questions (e.g., How is chemotherapy different from radiation or hormonal treatment?)

  • Customizable/shareable reminders, notes, and patient overview chart

  • Managing the challenges of caregiving
    • Self-care
    • Role recognition and understanding caregiver rights
    • Attitudes, approaches, and emotional challenges
  • Support Systems
    • Financial and legal support
    • Practical support
    • Psychosocial support
    • Social support
❖ Family
  • Suggestions for those in the family who won’t talk about cancer

  • Options to help relay news

  • Words to use to start conversations

  • Suggestions for how to ask for help

  • How to redirect an offer that is not helpful (saying no to help)

  • 10 questions to help learn about individual family communication and suggestions for self-care

❖ Far Away
  • Suggestions for far away family on how to help and ways to be involved

  • Ideas for what to tell far away family

  • Ways to share information

  • Shareable web resources

  • Relationship with healthcare providers
    • Active engagement with healthcare providers
    • Supported by healthcare providers to understand information
  • Understanding information
    • Understanding the healthcare system
    • Understanding the disease, treatment, and potential outcomes
    • Understanding information for day-to-day care
    • Processing health information
❖ Healthcare
  • Suggestions for communicating with healthcare providers

  • List of common medical words in plain language

  • Searchable plain language dictionary

  • Questions to ask about chemotherapy

*

Reference: Yuen, E. Y., Dodson, S., Batterham, R. W., Knight, T., Chirgwin, J., & Livingston, P. M. (2015). Development of a conceptual model of cancer caregiver health literacy. Eur J Cancer Care (Engl). doi: 10.1111/ecc.12284