Have you ever written down any thoughts about your future health plans? |
Yes, definitely |
43% (N = 38) |
30% (N = 14) |
0.32 |
Very probably |
1% (N = 1) |
2% (N = 1) |
Probably |
3% (N = 2) |
2% (N = 1) |
Probably not |
0% (N = 0) |
2% (N = 1) |
Definite no |
48% (N = 43) |
62% (N = 29) |
Don't know |
6% (N = 5) |
2% (N = 1) |
Have you ever heard about and completed a Health Care Power of Attorney, in which you name someone to make decisions about your health care in case you could not? |
Have heard about and completed |
76% (N = 68) |
53% (N = 25) |
0.018 |
Have heard about but not completed |
18% (N = 16) |
38% (N = 18) |
Have not heard about |
4% (N = 4) |
9% (N = 4) |
Don't know |
2% (N = 2) |
0% (N = 0) |
Have you ever heard about and completed an Advance Directive, such as the Five Wishes? |
Have heard about and completed |
56% (N = 50) |
40% (N = 19) |
0.32 |
Have heard about but not completed |
23% (N = 21) |
32% (N = 15) |
Have not heard about |
16% (N = 14) |
23% (N = 11) |
Don't know |
6% (N = 5) |
4% (N = 2) |
When do you think it is the best time to bring up end‐of‐life decisions? |
Before getting sick, while healthy |
80% (N = 72) |
58% (N = 26) |
0.048 |
When first diagnosed with a life‐threatening or progressive illness |
12% (N = 11) |
20% (N = 9) |
When first sick with a life‐threatening or progressive illness |
2% (N = 2) |
9% (N = 4) |
When first hospitalized with a life‐threatening or progressive illness |
3% (N = 3) |
7% (N = 3) |
If dying |
2% (N = 2) |
7% (N = 3) |
Who are the best people/person on the treatment team to bring it (end‐of‐life decisions) up with you? (Could select more than one) |
Primary care physician |
58% (N = 52) |
45% (N = 21) |
P > 0.05 for all comparisons |
Neurologist |
54% (N = 49) |
38% (N = 18) |
Nurse practitioner |
21% (N = 19) |
19% (N = 9) |
Nurse |
9% (N = 8) |
11% (N = 5) |
Social worker |
11% (N = 10) |
15% (N = 7) |
Psychologist |
9% (N = 8) |
9% (N = 4) |
Case manager |
6% (N = 5) |
9% (N = 4) |
Chaplain |
20% (N = 18) |
17% (N = 8) |
Patient advocate |
11% (N = 10) |
11% (N = 5) |
Other |
37% (N = 33) |
36% (N = 17) |