Table 2.

Health care transition outcome measure categories and sample measures

Health status	General and specific patient-reported outcomes	Healthcare utilization	Transition measures
Pulmonary function change per year (CF) Body mass index (CF) Pulmonary exacerbation rate per year (CF) PhenX Toolkit Measures (SCD) [64]	Patient-reported outcomes measurement information system Cystic Fibrosis Questionnaire-Revised (CF) [69] Adult Sickle Cell Quality of Life Measurement System [65] Educational attainment Employment status	Use of preventive services Visits to primary care provider Visits to subspeciality provider Emergency department use Hospitalization	TRAQ [70] TIP-RFT [66] KKIS-SCD [67] STARx 9 [68]

CF, cystic fibrosis; KKIS-SCD, Kennedy Krieger Independence Scales-Sickle Cell Disease; SCD, sickle cell disease; TIP-RFT, Transition Intervention Program Readiness for Transition; TRAQ, Transition Readiness Assessment Questionnaire.