Figure 1.

Our suggested protocol for surveillance screening of asymptomatic paediatric SDHB gene carriers. The figure outlines our suggested surveillance protocol for asymptomatic SDHB gene carriers in the paediatric population based on our data and the available published literature. It shows the different routes by which children are referred for genetic testing, and what should be included in their annual clinical review depending on the age of the child. *However, it should be noted that this protocol should be adapted depending on the maturity of the individual child and the families’ wishes.