Table 1.
Baseline characteristics
| All patients n = 91 |
Control group n = 45 |
Intervention group n = 46 |
|
|---|---|---|---|
| Newly diagnosed patients n (%) | 25 (27) | 13 (29) | 12 (26) |
| Sex (female) n (%) | 42 (46) | 23 (51) | 19 (41) |
| Age mean in years (sd) | 62 (8) | 63 (7) | 62 (10) |
| Location of primary tumor: n (%) | |||
| Pancreas | 21 (23) | 9 (20) | 12 (26) |
| Intestine | 53 (58) | 26 (58) | 27 (59) |
| Stomach/duodenum | 3 (3) | 2 (4) | 1 (2) |
| Colorectal | 2 (3) | 2 (4) | 1 (2) |
| Bronchopulmonal | 1 (1) | 1 (2) | 0 (0) |
| Appendix | 1 (1) | 1 (2) | 0 (0) |
| Unknown/other | 9 (10) | 4 (9) | 5 (11) |
| Duration of disease in months: mean (SD) | 41 (56) | 33 (38) | 50 (66) |
| Disease grade: n (%) | |||
| 1 | 57 (63) | 27 (60) | 30 (65) |
| 2 | 21 (23) | 12 (27) | 9 (20) |
| Unknown | 13 (14) | 6 (13) | 7 (15) |
| Marital state (Married) n (%) | 75 (82) | 34 (76) | 41 (89) |
| Education (Polytechnic or university) n (%) | 33 (37) | 16 (36) | 17 (38) |
| Internet use n (%) | |||
| Daily | 86 (96) | 40 (91) | 46 (100) |
| For information about the disease | 78 (87) | 37 (82) | 41 (89) |
| Treatment during study: n (%) | |||
| Surgery | 7 (8) | 2 (4) | 5 (11) |
| PRRT | 2 (2) | 1 (2) | 1 (2) |
| SSA | 64 (70) | 32 (71) | 32 (70) |
| Systemic treatment other than SSA | 17 (19) | 9 (20) | 8 (17) |
| Treatment before study: n (%) | |||
| Surgery | 52 (57) | 26 (58) | 26 (57) |
| PRRT | 2 (2) | 0 (0) | 2 (4) |
| Radiotherapy | 3 (3) | 0 (0) | 3 (6) |
| SSA | 65 (71) | 32 (71) | 33 (72) |
| Systemic treatment other than SSA | 23 (25) | 12 (26) | 11 (24) |
| Other (RFA) | 1 (1) | 0 (0) | 1 (2) |
n = number, PRRT = peptide receptor radionucleide therapy, RFA = radiofrequency ablation, SSA = somatostatin analogue