Table 2.
Information sources and decision-making among all non-small cell lung cancer survey participants and stratified by treatment decision status
| Information sources and decision-making factors | All participants (n = 77) | Chose MT (n = 76) | Decided against MT (n = 1) | |||
|---|---|---|---|---|---|---|
| n | % | n | % | n | % | |
| Sources used to learn about maintenance therapya | ||||||
| Treating oncologist | 74 | 96.1 | 73 | 96.1 | 1 | 100.0 |
| Nurse | 49 | 63.6 | 49 | 64.5 | 0 | 0.0 |
| Materials provided by healthcare professionals | 43 | 55.8 | 43 | 56.6 | 0 | 0.0 |
| Spouse/partner | 13 | 16.9 | 13 | 17.1 | 0 | 0.0 |
| Children/family members (other than spouse/partner) | 23 | 29.9 | 23 | 30.3 | 0 | 0.0 |
| Friends | 18 | 23.4 | 18 | 23.7 | 0 | 0.0 |
| Online | 30 | 39.0 | 30 | 39.5 | 0 | 0.0 |
| Media (TV, magazines, news) | 16 | 20.8 | 16 | 21.1 | 0 | 0.0 |
| No sources used | 3 | 3.9 | 3 | 4.0 | 0 | 0.0 |
| Timing of first discussion about MT with treating oncologist | ||||||
| Prior to any treatment | 34 | 44.2 | 33 | 43.4 | 1 | 100.0 |
| At beginning of first-line chemotherapy | 7 | 9.1 | 7 | 9.2 | 0 | 0.0 |
| During first-line chemotherapy | 6 | 7.8 | 6 | 7.9 | 0 | 0.0 |
| After first-line chemotherapy | 18 | 23.4 | 18 | 23.7 | 0 | 0.0 |
| Other | 4 | 5.2 | 4 | 5.3 | 0 | 0.0 |
| Number of discussions of MT with oncologist | ||||||
| 1 | 6 | 7.8 | 6 | 7.9 | 0 | 0.0 |
| 1 + | 67 | 87.0 | 66 | 86.8 | 1 | 100.0 |
| Does not remember | 4 | 5.2 | 4 | 5.3 | 0 | 0.0 |
| Felt they had a choice on whether or not to start MT after talking to oncologist about MT | ||||||
| Yes | 69 | 89.6 | 68 | 89.5 | 1 | 100.0 |
| No | 6 | 7.8 | 6 | 7.9 | 0 | 0.0 |
| Does not remember | 2 | 2.6 | 2 | 2.6 | 0 | 0.0 |
| Involvement in decision regarding maintenance therapya | ||||||
| Treating oncologist | 73 | 94.8 | 72 | 94.7 | 1 | 100.0 |
| Spouse/partner | 32 | 41.6 | 31 | 40.8 | 1 | 100.0 |
| Children/family members (other than spouse/partner) | 33 | 42.9 | 33 | 43.4 | 0 | 0.0 |
| Other | 4 | 5.2 | 4 | 5.3 | 0 | 0.0 |
| Nobody, made decision on their own | 7 | 9.1 | 7 | 9.2 | 0 | 0.0 |
MT maintenance therapy, TV television
aCan add up to more than 100% because multiple options could be selected