Table 2.
Examples of Suggested Adaptations by Theme
Brazil | Australia | |
---|---|---|
Linguistic | - suggestion to substitute ‘honor your wishes’ by ‘consider your wishes’ (more colloquial tone) | - differences in most commonly-used term e.g.,
tracheotomy vs. tracheostomy
(adjusted to the correct terminology in Australian English) - suggestion to substitute ‘what gives me joy’ by ‘what makes me happy’ (more colloquial tone) |
Cultural | - rewording ‘When my
end-of-life is near” to “When the moment that the end
of my life is near arrives” (less direct approach to
end-of-life care) - remove references to ‘memorial services’ and ‘celebration of life’ (not relevant to Brazilian culture) |
- rewording elements of the section on
‘Religious/spiritual beliefs’ e.g.,
remove references to ‘asking/giving
forgiveness’ (due to considerations that this may either
be confronting, confusing or irrelevant for a more secular Australian
AYA population) - expand options for different religious figures in the section on the section on ‘Religious/spiritual beliefs’ (e.g., including ‘Imam’ for Muslim patients) (to account for a more diverse and different range of religious/cultural communities in Australia) |
Health system | - remove references to
‘Medicaid’ (not relevant to Brazilian
health system) - differences in the definition of “benefits” (adjusted to the Brazilian health system context) |
- remove references to ‘Medicaid’, or ‘hiring or firing health care providers’ (not relevant to Australian public health system) |
Legal | - keep information about emergency care, but remove direct reference to the ‘Do Not Resuscitate order’ (not relevant to Brazilian health system) | - include prompts to consider formalized/legal clinical processes and documentation in the Australian setting to ensure that the young person’s decision is legally-binding and actually acted upon (such as ‘not for resuscitation’ or ‘NFR’ forms, “No CPR” orders and ambulance plans, as well as a legal will) (to enhance utility within Australian healthcare system) |