Skip to main content
. Author manuscript; available in PMC: 2019 Mar 14.
Published in final edited form as: Pac Symp Biocomput. 2019;24:427–438.
States/Territories Primary Consent HIPAA Authorization Return of Genomic
Results Consent
Bill of
Rights
eConsent
version
Form
version
eConsent
version
Form
version
eConsent
version
Form
version
AL, AK, AZ, AR, CO, CT*, DC, GA*, HI, ID, IA, KS, KT, MI, MS, MO, NE**, NV, NH, NJ, NM, NY, NC, ND, PA, RI, SC, SD, TN, UT, VT, VA**, WV, WI, Puerto Rico, US Virgin Islands, Guam, American Samoa, Northern Mariana Islands none Parent Parent Parent Parent Parent Parent
CA required Parent Parent Parent Date of expiry: Standard Parent Parent
DL, IN, LA, MN, OH, OK, WA none Parent Parent Parent Date of expiry: Standard Parent Parent
MA, OR, TX none Parent Parent Sensitive Data Confirmation Parent Parent Parent
ME, MT** none Parent Parent Parent Date of expiry: 30-month Parent Parent
MD, WY none Parent Parent Parent Date of expiry: 12-month Parent Parent
IL none Parent Parent Witness Signature Access to records Parent Parent
FL none Parent Parent Parent Parent Share with healthcare provider Parent
*

In Connecticut and Georgia HIPAA Authorizations are valid for one year from their date of signature to request of records from insurance providers.

**

In Montana, Nebraska, and Virginia HIPAA Authorizations are valid for two years from their date of signature for the request of records from insurance providers.

Other notes:
  • In the states of Maine and Montana, HIPAA Authorizations are only valid 30 months (in Montana, only if expiry date is provided). Given the nature of rolling enrollment, we will update the form used by those in Maine and Montana on an annual basis to state a date 30 months from January 1st of the enrollment year. At the date of expiry (30 months from January 1st of the enrollment year), all persons consented that calendar year would be contacted for re-authorization on a form listing a date 30 months hence. For example, the 2018 form will expire on 7/1/2020. Those consented in 2018 would be asked to re-sign a form 7/1/2020 expiring 12/31/2022.
  • In the states of Maryland and Wyoming, HIPAA Authorizations are only valid for one year. Annually, people who receive care in Maryland or Wyoming will be invited to re-sign the same form with a 12-month expiry (but no date) listed.