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. Author manuscript; available in PMC: 2019 Mar 14.
Published in final edited form as: Pac Symp Biocomput. 2019;24:427–438.

Table 1:

Overview of AoURP consent modules

Module Addresses
Primary Overview of all program activities. Signature indicates consent to take part in surveys and data linkage from external sources (e.g., state cancer registries), and, if invited, physical measurements, biospecimen collection (including biobanking and biomarker/genomic assays), and sensor/wearable technology activities.
HTPAA Authorization Signature indicates consent to regular collection of electronic health records from all identifiable health care providers/entities including Part 2 (substance use disorder treatment) records and personally identifiable information (PII) from any source.
Return of Genomic Results Signature indicates consent to receive medically-actionable genomic testing results from the program.