Table 3:

Themes, Quotes, and Actions from Phase II

Phase 2: Conceptualize the information needs of patients and providers
Insights	Quotes	Actions
Patients view their health holistically.	“In the morning I used to jump out of bed and say, ‘I’m super woman, I can get going.’ Now I’m like, ‘Stop and stretch. Do a couple of bends.’” –Patient, ZSFG	Design dashboard as a “snapshot” of how the patient is feeling over time to support a deeper conversation about their longer-term goals.
	“For myself I had to do some changes in my diet to help me live with my RA. [I had to give up] certain things I really, really like.” –Patient, ZSFG
Patients having long term goals or fears within which they couch their shorter-term decisions.	“Spending time with my grandchildren where they can just come over and I’m not in so much pain. I want to do things with them.” –Patient, ZSFG
	“I also have a visual of my grandmother…She was bedridden, never left the house, and was totally deformed. I want to be able to maintain [my current health] forever.” –Patient, UCSF
Existing clinic processes and patterns exacerbate patients’ fear of medications and establish conflicted understandings between patients and providers.	“My biggest question all of the time is the medicine and how will it damage my body over more time.” –Patient, ZSFG	Make lab values clear to provide reassurance, but not the focus.
	“Lab results rarely show a problem. I don’t need to focus on them unless they do.” –Provider, UCSF