Table 2.
Interview guide
Section | Questions |
---|---|
Demographics | • Professional background, function as policymaker, description of their role as policymaker • Have you heard of preconception expanded genetic screening? If yes, in what context? |
Healthcare decision-making | • What would influence/impact your judgment in assessing preconception ECS? Are there certain ideologies? Values? Interests you would keep in consideration? What are they? • Would you advocate for public engagement in deciding on implementing preconception ECS in Sweden? Why and to what extent? • What type of research do you need to consider in evaluating preconception ECS? • What about economic considerations? In case of situations with limited resources, should preconception ECS to be prioritized? Why? |
Preconception ECS | • Can you think of any value conflicts when deciding on preconception ECS? What are these values and what obstacles can you foresee? • From your perspectives, what are the ethical issues to consider when evaluating preconception ECS? • From your perspectives, what are the social issues to consider when evaluating preconception ECS? • From your point of view, what are the positive consequences generated by implementing preconception-expanded carrier screening? For parents, for healthcare system? For society? • What are the potentially negative consequences? For parents, for healthcare system? For society? • What would make Swedish healthcare consider implementation of preconception ECS? What is your stance on that? |