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. 2018 Sep 26;10(2):267–280. doi: 10.1007/s12687-018-0389-x

Table 2.

Interview guide

Section Questions
Demographics • Professional background, function as policymaker, description of their role as policymaker
• Have you heard of preconception expanded genetic screening? If yes, in what context?
Healthcare decision-making • What would influence/impact your judgment in assessing preconception ECS? Are there certain ideologies? Values? Interests you would keep in consideration? What are they?
• Would you advocate for public engagement in deciding on implementing preconception ECS in Sweden? Why and to what extent?
• What type of research do you need to consider in evaluating preconception ECS?
• What about economic considerations? In case of situations with limited resources, should preconception ECS to be prioritized? Why?
Preconception ECS • Can you think of any value conflicts when deciding on preconception ECS? What are these values and what obstacles can you foresee?
• From your perspectives, what are the ethical issues to consider when evaluating preconception ECS?
• From your perspectives, what are the social issues to consider when evaluating preconception ECS?
• From your point of view, what are the positive consequences generated by implementing preconception-expanded carrier screening? For parents, for healthcare system? For society?
• What are the potentially negative consequences? For parents, for healthcare system? For society?
• What would make Swedish healthcare consider implementation of preconception ECS? What is your stance on that?