Table 2.
Interview guide domains and sample questions
| Domain | Sample questions |
|---|---|
| Learning about the diagnosis and genetics of HD | 1. When did you learn about your parent’s diagnosis of HD? What was that like for you? |
| 2. When did you learn about the genetics/inheritance of HD? What was that like for you? | |
| Caregiving role | 1. Explain your role as a caregiver for your parent with HD. |
| 2. What has this experience been like for you? | |
| Genetic risk and caregiving | 1. Does knowing about your genetic risk impact your caregiving? |
| 2. Does the act of caregiving impact how you feel about your genetic risk? | |
| Genetic risk, caregiving, and predictive genetic testing | 1. Have you heard about predictive genetic testing? |
| 2. Have you thought about predictive testing for yourself? If so, what are your thoughts/plans? | |
| 3. Do you think your caregiving experience has impacted how you feel about testing and your plans to pursue (or not pursue) testing? |