Table 1.

Name, responsible institution, objectives, minimum data set, and voluntary of registries in selected countries

Country	Name of registry	Responsible institute	Objectives of registry	Minimum data set	Voluntary/mandatory
USA[17]	National ART Surveillance System (NASS)	CDC and SART	Developing and maintaining the ART standards. NASS is the only data reporting system for ART procedures that has been approved by CDC	Patient demographics, medical history, and infertility diagnoses; clinical information pertaining to the ART procedure type; and information regarding resultant pregnancies and births	Voluntary
Canada[18]	The Canadian Assisted Reproductive Technologies Register (CARTR)	The IVF Directors Group of the Canadian Fertility and Andrology Society (CFAS)	Reporting the outcomes of ART cycles which have been done in centers in Canada	Patient demographics, diagnosis, and obstetric history; details of treatment; and pregnancy and birth outcomes for each ART treatment cycle initiated.	Voluntary
Latin American[19]	The Latin American Registry of Assisted Reproduction (RLA)	The Latin American Network of Assisted Reproduction (REDLARA)	1-Publishing information about the performed ART procedures 2- Monitoring the results and situation of safety and efficacy 3- Empowering infertile couples to assess the advantages and disadvantages of ART treatments 4- developing an strong database for epidemiological studies	1-Number of treatment cycles per technique and availability 2-Outcome of pregnancies and deliveries	Voluntary
Belgium[14]	BELRAP (Belgian Register for Assisted Procreation)	The national College of Physicians for Reproductive Medicine	Facilitating the use and management of the data, providing accurate statistical information on activities and outcome and ensuring the quality control	1-Age 2-Number of embryos transferred and multiple births 3-Outcome according to the number of ET and stage of development at transfer 4-Perinatal outcome and complications 5- PGD/PGS	Voluntary
Denmark[20]	The Danish National IVF Registry	the National Board of Health	Monitoring the assisted reproduction. Reporting individual treatment cycles and pregnancy outcomes	An IVF cycle record contains 124 fields such as “Date of birth of the patient”, “Labo rank” or “Pregnancy outcome”. A non-IVF cycle record contains 46 fields such as “Intrauterine insemination (IUI)”, “Ovarian stimulation” or “Date of delivery”.	Mandatory
Germany[15]	The German IVF Register (Deutsches IVF-Register) D.I.R()	The German Society for Gynecology and Obstetrics	Scientific evaluation of procedures, political decision-making concerning reproductive therapy, the general public, and patients, as well as collecting and publishing the outcomes of IVF and related methods	Demographic data, treatments and complications to treatments and pregnancy, Births per initiated cycles in relation to age and treatment	Voluntary
France[12]	The FIVNAT registry (French In Vitro National)	U292 of French National Institute for Health and Medical Research (INSERM)	Collecting information from the beginning of the procedure to the childbirth. Obtaining an extensive knowledge of IVF practice and analyzing facilitating factors	Data regarding frozen embryo replacement (FER) and egg donation (ED) were recorded likewise.	Voluntary
Switzerland[1,21,22]	FIVNAT-CH Register (National Swiss IVF Register)	The Swiss Society for Reproductive Medicine (SSRM)	Providing scientists with accurate ART data, and also for politicians, media, and patients. Validating the accuracy and the reliability of the collected data	Demographic, Treatments (IVF with ET, GIFT, ICSI, IVF/ICSI, PBD), pregnancy rate, birth rate, miscarriages, ectopic pregnancies, abortions, rate of multiple births, malformations.	Voluntary
Italy[23]	Italian National Registry of ART	the Ministry of Health	Collecting and publishing information related to all ART treatments and IUI procedures performed in the country	A 56-item form. Data are collected in three forms: one for the infertility diagnosis and the attempted recovery, one for thawed embryo transfers, and one for obstetric and pediatric data	Mandatory
Egypt[16]	Egyptian IVF registry	independent, nonprofit, nongovernmental body	Collecting, analyzing and reporting the effectiveness of treatment schemes and identifying the risk of complications	the medical indications for treatment, the protocol for ovarian stimulation, oocyte collection, details from the laboratory, embryo transfer and luteal support; thawing and replacement of frozen-thawed zygotes and embryos; the pregnancy, delivery, and neonates	Voluntary
SOUTH AFRICAN[24]	SOUTH AFRICAN REGISTRY FOR ASSISTED REPRODUCTIVE TECHNIQUES (SARA)	The Southern African Society of Reproductive Medicine & Gynecological Endoscopy (SASREG)	Implementing innovative programs to improve the reproductive care in South Africa, making the assessment to find out if the desired effects have been achieved	Treatments and treatments outcomes. Data collection it is performed separately for IUI procedures and IVF-ICSI-GIFT on different electronic forms. The number of cycles performed for each technique, the number of patients treated, kind of infertility diagnosed, complication during treatments and results, pregnancies outcomes and babies born	Voluntary
Australia and New Zealand[25,26,27]	The Australia and New Zealand Assisted Reproduction Database (ANZARD)	The Fertility Society of Australia and hosted at the National Perinatal Epidemiology and Statistics Unit (NPESU).	Monitoring the perinatal outcomes of assisted reproduction and evaluating the effectiveness of ART treatments	Demographic, cause of infertility, Treatments (IVF, ICSI, FER), follow-up data on pregnancies and deliveries, the outcome of all pregnancies. Complications of ART, pregnancies and deliveries after treatment, congenital anomalies/chromosomal aberrations in babies born after ART.	Mandatory
Japan[28,29]	ART online registry	The Japan Society of Obstetrics and Gynecology (JSOG)	Collecting information on cycles of all ART treatments and Comparing them with the previous years. Reviewing the success and safety of ART in Japan	Procedures and pregnancies by age, transfer cycles and pregnancies (in brackets) by the number of embryos/blastocysts transferred and age, Pregnancy outcome by age, ongoing pregnancy and delivery, live births, unknown outcome, pregnancy rates, live birth rates	Mandatory
India[11]	National Art Registry of India (NARI)	the Indian Society of Assisted Reproduction (ISAR)	Providing appropriate help and support for health care providers who deal with infertility problems	Ovarian stimulation, frozen embryo transfer, oocyte donation	Mandatory