Table 1.
Rank order of preferred outcome measure by clinical area of use.
| Clinical area | Outcome measures selected | Set of outcome measurement of SCIRE toolkit | |
|---|---|---|---|
| 1° choice | 2° choice | ||
| Assistive technology | Quebec user evaluation of satisfaction with assistive technology | Assistive technology device predisposition assessment | • Assistive technology device predisposition assessment • Quebec user evaluation of satisfaction with assistive technology |
| Community reintegration | Craig handicap assessment and reporting technique | Community integration questionnaire | • Assessment of Life Habits Scale (LIFE-H) • Community Integration Questionnaire (CIQ) • Craig Handicap Assessment and Reporting Technique (CHART) • Impact on Participation and Autonomy Questionnaire (IPAQ) • Physical Activity Recall Assessment for People with Spinal Cord Injury (PARA-SCI) • Reintegration to Normal Living (RNL) Index • Physical Activity Scale for Individuals with Physical Disability (PASIPD) |
| Lower limb and walking | 6-Min walk test | 10 Meter walking test | • 6-Min Walk Test (6MWT) • 10 Meter Walking Test (10 MWT) • Berg Balance Scale (BBS) • Clinical Outcome Variables Scale (COVS) • Functional Standing Test (FST) • Spinal Cord Injury Functional Ambulation Inventory (SCI-FAI) • Timed Up and Go Test (TUG) • Walking Index for Spinal Cord Injury (WISCI) and WISCI II |
| Mental health | Hospital anxiety and depression scale | Beck depression inventory | • Beck Depression Inventory (BDI) • Brief Symptom Inventory (BSI) • CAGE Questionnaire • Center for Epidemiological Studies Depression Scale (CES-D and CES-D-10) • Depression Anxiety Stress Scale-21 (DASS-21) • Fatigue Severity Scale (FSS) • Scaled General Health Questionnaire-28 (GHQ-28) • Hospital Anxiety and Depression Scale (HADS) • Patient Health Questionnaire-9 (PHQ-9) • Symptom Checklist-90-Revised (SCL-90-R) • Zung Self-Rating Depression Scale (SDS) |
| Neurological impairment and autonomic dysfunction | International standards for neuorlogical classification of spinal cord injury | Surface electromyography | • International standards for neurological classification of spinal cord injury • Surface electromyography |
| Other affected physiological systems | Spinal cord injury secondary conditions scale | Spinal cord lesion coping strategies questionnaire | • Spinal Cord Injury Secondary Conditions Scale (SCI-SCS) • Exercise Self-Efficacy Scale (ESES) • Moorong Self-Efficacy Scale (MSES) • Spinal Cord Lesion Coping Strategies Questionnaire (SCL CSQ) • Spinal Cord Lesion Emotional Well-being Questionnaire (SCL EWQ) • Wingate Anaerobic Testing (WAnT) |
| Pain | Classification system for chronic pain in SCI | Brief pain inventory | • Classification system for chronic pain in SCI • Donovan SCI Pain Classification System • Multidimensional Pain Inventory (MPI) - SCI version • Multidimensional Pain Readiness to Change Questionnaire (MPRCQ2) • Quantitative Sensory Testing (QST) • Tunk's Classification Scheme • Wheelchair Users Shoulder Pain Index (WUSPI) • Brief Pain Inventory (BPI) |
| Quality of life and health status | Short form 36 | Life satisfaction questionnaire | • Incontinence Quality of Life Questionnaire (I-QOL) • Life Satisfaction Questionnaire (LISAT-9, LISAT-11) • Quality of Life Index (QLI) - SCI Version • Quality of Life Profile for Adults with Physical Disabilities (QOLP-PD) • Quality of Well-Being (QWB) and Quality of Well-Being—Self-Administered (QWB-SA) • Qualiveen • Satisfaction with Life Scale (SWLS, Deiner Scale) • Short Form 36 (SF-36) • Sickness Impact Profile 68 (SIP 68) • World Health Organization Quality of Life—BREF (WHOQOL-BREF) |
| Self care and daily living | Spinal cord independence measure | Functional independence measure | • Appraisal of DisAbility: Primary and Secondary Scale (ADAPSS) • Rivermead Mobility Index (RMI) • Barthel Index (BI) • Frenchai Activities Index (FAI) • Functional Independence Measure (FIM) • Functional Independence Measure Self-Report (FIM-SR) • Klein-Bell Activities of daily Living scale (K-B Scale) • Lawton Instrumental Activities of Daily Living scale (IADL) • Quadriplegia Index of Function—Short Form (QIF-SF) • Self Care Assessment Tool (SCAT) • Self Reported Functional Measure (SRFM) • Spinal Cord Injury Lifestyle Scale (SCILS) • Spinal Cord Independence Measure (SCIM) • Quadriplegia Index of Function Modified (QIF-Modified) |
| Sexuality and reproduction | Sexual interest and satisfaction scale | Sexual behavior scale (SBS) | • Emotional Quality of the Relationship Scale (EQR) • Knowledge, Comfort, Approach, and Attitude toward Sexuality Scale (KCAASS) • Sexual Attitude and Information Questionnaire (SAIQ) • Sexual Behavior Scale (SBS) • Sexual Interest, Activity and Satisfaction (SIAS)/Sexual Activity and Satisfaction (SAS) Scales • Sexual Interest and Satisfaction Scale (SIS) |
| Skin health | Braden scale | Spinal cord injury pressure ulcer scale measure | • Skin Management Needs Assessment Checklist (SMNAC) • Abruzzese scale • Braden scale • Gosnell measure • Norton measure • Spinal Cord Injury Pressure Ulcer Scale (SCIPUS) Measure • Spinal Cord Injury Pressure Ulcer Scale—Acure (SCIPUS-A) • Stirling's pressure ulcer severity scale • Waterlow scale |
| Spasticity | Ashworth and modified ashworth scale | Penn spasm frequency scale (PSFS) | • Pendulum Test (Wartenberg) • Ashworth and Modified Ashworth Scale (MAS) • Penn Spasm Frequency Scale (PSFS) • Spinal Cord Assessment Tool for Spastic Reflexes (SCATS) • Spinal Cord Injury Spasticity Evaluation Tool (SCI-SET) |
| Upper limb | Hand-held myometer | Grasp and release test | • Box and Block Test (BBT) • Capabilities of Upper Extremity Instrument (CUE) • Grasp and Release Test (GRT) • Hand-Held Myometer • Jebsen Hand Function Test (JHFT) • Modified Functional Reach Test (mFRT) • Sollerman hand function test • Tetraplegia Hand Activity Questionnaire (THAQ) • Van Lieshout Test Short Version (VLT-SV) • Graded Redefined Assessment of Strength, Sensibility, and Prehension (GRASSP) • 6-Min Arm Test (6-MAT) |
| Wheeled mobility | Wheelchair skills tests | Wheelchair circuit | • 4 Functional Tests for Persons who Self-Propel a Manual Wheelchair (4FTPSMW) • Tool for assessing mobility in wheelchair-dependent paraplegics • Timed Motor Test (TMT) • Wheelchair Circuit (WC) • Wheelchair Skills Tests (WST) • I don't assess Wheeled Mobility |