Table 7.

Preferences about privacy and communication of genetic information inside and outside the family: Survey responses.

Survey Question	Percent (n)
“How concerned would you be if your biological family members learned your genetic research results?”	7.4% (139/1740) concerned*
“How concerned would you be if an employer learned your or your biological family member’s genetic research results?”	77.6% (1450/1869) concerned
“How concerned would you be if your health insurance company learned your or your biological family member’s genetic research results?”	81.1% (1521/1875) concerned
“I would NOT want my blood relatives to know about my genetic results [assuming they were medically useful]” (emphasis in the original).	7.5% (142/1886) agreed**
“I would want my genetic results [assuming they were medically useful] to be kept PRIVATE, even after my death” (emphasis in the original).	4.4% (82/1885) agreed

^*“Concerned” combined “extremely concerned” and “quite concerned” responses on a 4-point scale that also included “slightly concerned,” and “not at all concerned.”

^**“Agreed” combined “strongly agree” and “agree” responses on a 5-point scale that also included “neither agree nor disagree,” “disagree,” and “strongly disagree.”