Table 3.
Case Example. Issues Raised in Focus Groups and Corresponding Items
| SCI-QOL: Patient focus group comment |
Open Code |
Axial Code | Selective Code |
SCI-QOL item(s) |
|---|---|---|---|---|
| “It’s hard enough to age getting old it’s not fun...it’s a lot of fear, like what’s gonna happen down the line? How...am I gonna handle it or what’s gonna happen to me. You get a lot of...anxiety, fear you know.” | Fear / Anxiety | See Figure 3 for detail on the Axial Coding of the Fear/Anxiety Subdomain | Fear of Aging with SCI | I was afraid of what the future holds for me.a |
| “…(P)risoner in your own body…”; “…(F)eeling of like being trapped…” | Fear / Anxiety | Feeling Trapped in Body | I felt trapped in my own body.b | |
| “I’m laying there and my chair is not next to where I am, I get anxiety.” | Fear / Anxiety | Dependence on Devices, Others | I was anxious if my wheelchair / walking aid was not nearby.b | |
| “If I fall and break a hip…then will it be the end of the road, will I not be able to have my own place, would it mean a nursing home?” | Fear / Anxiety | Worry / Uncertainty | I was afraid that I would be unable to live alone.b |
a
Neuro-QOL item.New
b
SCI-specific item.