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. Author manuscript; available in PMC: 2020 Apr 1.
Published in final edited form as: Cancer Prev Res (Phila). 2019 Mar 1;12(4):271–282. doi: 10.1158/1940-6207.CAPR-18-0435

Table 3.

Interview Guide Modality Descriptions

Cancer Type Modality Focus Group Round 1 Description Focus Group Round 2 Description
Breast and Ovarian Cancers Pill A pill taken daily for 5 years (Tamoxifen). Possible side effects: hot flashes, blood clots, cataracts, and elevated risk of uterine cancer. No changes
Topical Agent A cream or gel to be applied to one’s breasts. Possible side effects: irritated skin or rash. Similar to hand sanitizer or clear glue. Possible side effects: hand sanitizer –sensitivity to sunlight and irritated skin (burning/itching) or rash for 5–10 minutes after application; clear glue – rash for 7 days after initially starting application.
Surgical Options Discussed as an alternative to chemopreventive agents. No changes
Gynecologic Cancers Hormonal Implant or Ring Similar to a hormonal implant, like Mirena®, or ring, like NuvaRing®. Possible side effects: headache, acne, breast tenderness, changes in your period, changes in your mood, weight gain, ovarian cysts, and/or cramping. No changes
Topical Agent A cream or gel to be applied to one’s cervix. Possible side effects: irritation or rash. No changes
Surgical Options Discussed as an alternative to chemopreventive agents. No changes
Lung/Head/Neck/Oral Cancers Aerosolized Drug Similar to an inhaler or nebulizer. Possible side effects: coughing. A small device (similar to an asthma inhaler) that is 6 inches in height and weighs under 8 ounces.
Light Stimulation Therapy A handheld device that emits light to a targeted area of one’s body. Possible side effects: sensitivity to light, burns, swelling, pain, scarring, coughing, trouble swallowing, stomach pain, and shortness of breath. Going to a clinic for one light-therapy session, with the possibility
of needing a second treatment several months later.
Topical Agent A mouthwash that can be swished around in one’s mouth and/or swallowed. Possible side effects: irritated skin or rash in mouth. No changes