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. Author manuscript; available in PMC: 2019 Apr 9.
Published in final edited form as: J Law Med Ethics. 2017 Jul 14;45(2):238–259. doi: 10.1177/1073110517720653

Table 5.

Concerns of Participants Related to Sharing Their Data for Research

Reasons To Don’t Share Information For Research Responses
Worried about losing privacy 40%
Worried about government agencies having access to records 28%
Worried about insurance companies having access to records 26%
Worried that information may be used by for-profit companies 24%