Table 2.
I: Questions on the treatment of patients with severe and persistent mental illness (SPMI) | |
In the treatment of patients with severe and persistent mental illness (SPMI), how important is: | |
A) curing the illness | |
B) reduction of suffering | |
C) the patient’s ability to function in daily life | |
D) the patient remaining autonomous in their decision making | |
E) impeding suicide | |
According to the World Health Organization (WHO), palliative care ‘is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual’. | |
How strongly do you agree or disagree with the following. | |
F) For me, the term ‘palliative’ relates directly to end of life. | |
G) For some SPMI patients, palliative care is indicated. | |
H) In psychiatry, applying a palliative care model is important in providing optimal support for certain patients without a life-limiting medical illness. | |
I) In severe, chronic and therapy-refractory anorexia nervosa, a palliative approach would be suitable. | |
J) In severe, chronic and therapy-refractory schizophrenia, a palliative approach would be suitable. | |
K) In severe, chronic and therapy-refractory depression, a palliative approach would be suitable. | |
L) In severe, chronic and therapy-refractory bipolar disorder, a palliative approach would be suitable. | |
M) In severe, chronic and therapy-refractory substance disorder, a palliative approach would be suitable. | |
How strongly do you agree or disagree with the following. | |
N) SPMI can be a terminal illness. | |
O) Sedation for the reduction of unbearable refractory psychological symptoms is justifiable in certain cases of SPMI. | |
P) I would generally be willing to perform sedation as mentioned above in ‘O’. | |
Q) I generally advocate access to assisted suicide for patients with SPMI. | |
R) If physician-assisted suicide was legally permitted for SPMI, I would support my patients in seeking this intervention as the physician of record or by referring them to another physician. | |
II: Questions about the three case vignettesa | |
Please evaluate the case vignettes as below. | |
S) I would not be surprised if this patient died within the next 6 months. | |
T) For this patient, further interventions to cure the anorexia would most likely be futile. | |
U) In this case, I would be comfortable with a reduction of life expectancy in order to increase or maintain quality of life if consistent with the patient’s goals. | |
V) In this case, I would accept a temporary decrease in quality of life due to coercive measures. | |
W) In this case, I would not proceed against the patient’s wishes. | |
X) In this case, sedation to reduce an unbearable refractory symptom is reasonable. | |
Y) If physician-assisted suicide was legally permitted, I would support this patient if this was her explicit and enduring wish, referring her to appropriate care. |
aNote: Questions S–Y applied to all three case vignettes in Table 1