Skip to main content
. Author manuscript; available in PMC: 2019 Apr 12.
Published in final edited form as: Clin Pediatr (Phila). 2018 Jul 17;57(12):1453–1464. doi: 10.1177/0009922818788307

Table 3.

Summary of findings for studies on End of Life Care (n=4)

Citation Study Purpose Study Design Setting Participants Treatment Decision Key Findings
Moseley, 2004 To examine racial differences in parental end-of-life decisions for neonates Retrospective chart review Neonatal Intensive Care Unit in Detroit, MI. 38 infants; 58% Black, 42% White Withholding or withdrawing life-sustaining medical treatment. * • White families agreed to limit treatment more often than Black families (80% vs. 62%).
Edmonds, 2011 To determine whether race/ethnicity was associated with differences in periviable infant intubation Retrospective cohort study Children hospitals in California, Missouri, and Pennsylvania. 9632 infants; 19% Black, 33% White, 37% Hispanic, 11% Other. Intubation • Intubation was higher among Black infants compared to Whites and Hispanics (OR: 1.25, 95% CI: 1.07–1.46).
Thienprayoon, 2013 To determine association of race/ethnicity with hospice enrollment in children with cancer Retrospective cohort study Community hospice facilities in East Texas 114 children; 37% White, 44% Hispanic, 20% Other. Hospice enrollment • Hispanic patients were more likely to enroll in hospice vs Whites (OR 5.961, 95% CI 1.45–31.04).
Baker, 2009 To determine association of race/ethnicity with frequency Do-not-resuscitate orders or end-of-life discussions Retrospective chart review St. Jude’s research hospital 206 children; 28% Black, 72% White. Do-not-resuscitate order • No significant racial/ethnic difference in number of DNR orders or hospice enrollment rate.