Table 1.
Healthcare and professional support themes generated from the one-to-one responses with a short description of each theme [numbers of statements contributing to each theme are shown in brackets as (high priority, lower priority) statements]
| What is working well? | What is not working well? | What is important to you for the future? | |
|---|---|---|---|
| Healthcare and professional support | Clinical support: Healthcare staff who care, feeling well looked after, having treatments explained (11,9) Good access: Being able to see a doctor or nurse when necessary (9,7) Medication: The right medication when needed, feeling empowered to use it (6,9) Feeling safe: Receiving support to feel safe (4,0) Great staff: Terrific, supportive and kind staff (4,0) Listening and understanding practitioners: Someone to talk to who listens and understands (4,0) Complementary support: Exercise referral was helpful (1,0) Feeling in control: Feeling empowered and able to use the system(0,2) |
I don’t think the right hand knows what the left hand is doinga: Mistakes, delays, duplication, can’t get what one needs, lack of information (12,3) I can’t get appointments when I want thema: Frustration with availability and booking systems (4,3) I’m not treated as a persona: Feeling pre-judged, not having my COPD treated, insensitive communication (4,2) I’m confused by conflicted advice: Being told different things by different people, not being kept up to date (3,0) I’m angry when there are errors: Receiving wrong information, drugs or treatment (3,0) I feel rushed: Not enough time with the doctor (2,0) I was ill-informed: Not informed about side-effects or condition (2,1) I haven’t had enough physiotherapy: Wanted more support after discharge or rehab (2,1) Access to healthcare staff: Not able to see a GP who knows me (0,3) Other: Poor communication, long waits in the waiting room, dislike of group exercise, second rehab not as good as first, not enough is known about COPD, hospital not interested enough in COPD (0,6) |
I want help in all respects from public services: Help with housing, benefits, support for family members, information about support groups (12,4) I would like good clinical and professional support from professionals with the right knowledge: More professional advice and understanding, honest communication, prompt medication, good communication among HCPs (6,6) I want to be seen by my own doctor when I need it, on time: Being seen by the same doctor who knows me and on time (3,0) I would like more organised exercise: Exercise classes (3,0) Look at me when I talk to you: Look at the patient when talking to them (0,2) |
aThemes voted as highest priority themes in the ‘what’s not working’ category