Table 1.
Characteristics of participants at T0 for the total sample and stratified by reason for referral
| Total sample (n = 2194) | Affected counselees (n = 791) | Unaffected counselees (n = 1044) | Parents of referred children (n = 359) | |
|---|---|---|---|---|
| Hospital | ||||
| University Medical Center Groningen | 1326 (60.4%) | 513 (38.7%) | 638 (48.1%) | 175 (13.2%) |
| University Medical Center Utrecht | 868 (39.6%) | 278 (32.0%) | 406 (46.8%) | 184 (21.2%) |
| Age 1,2 | 47.8 (14.8) | 51.6 (14.5) | 47.3 (15.0) | 40.8 (11.6) |
| Gender | ||||
| Female | 1524 (69.5%) | 548 (36.0%) | 696 (45.7%) | 280 (18.4%) |
| Male | 670 (30.5%) | 243 (36.3%) | 348 (51.9%) | 79 (11.8%) |
| Marital status 1 | ||||
| Living together without children | 717 (32.9%) | 313 (43.7%) | 360 (50.2%) | 44 (6.1%) |
| Living together with children | 966 (44.4%) | 271 (28.1%) | 441 (45.7%) | 254 (26.3%) |
| Living alone with children | 113 (5.2%) | 34 (30.1%) | 49 (43.4%) | 30 (26.5%) |
| Single | 249 (11.4%) | 117 (47.0%) | 117 (47.0%) | 15 (6.0%) |
| Different situation | 132 (6.1%) | 50 (37.9%) | 68 (51.5%) | 14 (10.6%) |
| Education level 1 | ||||
| Basic (primary school, secondary school, lower vocational education) | 434 (20.3%) | 167 (38.5%) | 221 (50.9%) | 46 (10.6%) |
| Intermediate (middle vocational education) | 861 (40.3%) | 299 (34.7%) | 400 (46.5%) | 162 (18.8%) |
| High (higher vocational education, university) | 839 (39.3%) | 298 (35.5%) | 400 (47.7%) | 141 (16.8%) |
| Employment status 1 | ||||
| Working | 1135 (58.2%) | 321 (28.3%) | 607 (53.5%) | 207 (18.2%) |
| Studying | 72 (3.7%) | 24 (33.3%) | 45 (62.5%) | 3 (4.2%) |
| Unemployed | 314 (16.1%) | 112 (35.7%) | 126 (40.1%) | 76 (24.2%) |
| Unable to work (disabled) | 115 (5.9%) | 70 (60.9%) | 32 (27.8%) | 13 (11.3%) |
| Retired | 274 (14.1%) | 142 (51.8%) | 118 (43.1%) | 14 (5.1%) |
| Voluntary work | 40 (2.1%) | 21 (52.5%) | 13 (32.5%) | 6 (15.0%) |
| Type of disease | ||||
| Cancer | 1097 (50.0%) | 458 (41.8%) | 618 (56.3%) | 21 (1.9%) |
| Heart diseases | 462 (21.1%) | 151 (32.7%) | 278 (60.2%) | 33 (7.1%) |
| Neurological disorders | 264 (12.0%) | 79 (29.9%) | 73 (27.7%) | 112 (42.4%) |
| Other type of diseases (e.g. congenital syndromes, intellectual disability, prenatal pathology) | 371 (16.9%) | 103 (27.8%) | 75 (20.2%) | 193 (52.0%) |
1 = this variable has missing values; 2 = mean and SD are shown