Table 3.
Satisfaction and concerns among carriers, who underwent Risk-Reducing Mastectomy (RRM), considering their medical history (healthy carriers and those with a previous BC).
| Results as a Median (range) [% Reporting a Score of ≥8/10] | ||||
|---|---|---|---|---|
| Questions | Overall (93 pts) |
Healthy (39 pts) |
Previous BC (54 pts) |
p- Value * |
| On a scale of 1 (little) to 10 (very), how much are you satisfied with the given information on…? | ||||
| Surgical procedure RRM | 9 (1–10) [76.3%] | 10 (3–10) [92.3%] | 9 (1–10) [63.0%] | NS |
| Possible postoperative complications of RRM | 9 (1–10) [66.7%] | 9 (3–10) [79.5%] | 9 (1–10) [55.6%] | NS |
| Cosmetic results of RRM | 8 (1–10) [53.7%] | 8 (1–10) [61.5%] | 8 (3–10) [46.3%] | NS |
| Change in breast tactile sensation after RRM | 8 (1–10) [50.5%] | 8 (1–10) [61.5%] | 7 (1–10) [40.7%] | NS |
| BC risk reduction after RRM | 9 (1–10) [78.5%] | 10 (1–10) [94.9%] | 9 (1–10) [64.8%] | 0.0147 |
| On a scale of 1 (little) to 10 (very), after RRM, how much are you satisfied with…? | ||||
| The shape of the reconstructed breast | 7 (1–10) [39.8%] | 7 (1–10) [46.2%] | 7 (1–10) [33.3%] | NS |
| The nipple-areola complex tactile sensation | 1 (1–10) [9.7%] | 1.5 (1–10) [15.4%] | 1 (1–10) [5.6%] | NS |
| The feel of the reconstructed breast | 4 (1–10) [14.0%] | 4 (1–10) [20.5%] | 4 (1–10) [9.3%] | NS |
| On a scale of 1 (little) to 10 (very), after RRM, can you feel a change in…? | ||||
| Your perceived body appearance | 7 (1–10) [31.9%] | 5 (1–10) [33.3%] | 7 (1–10) [29.6%] | NS |
| Your discomfort in being naked with your partner | 6 (1–10) [35.5%] | 5 (1–10) [30.8%] | 7 (1–10) [37.0%] | NS |
| Your sexual intimacy with your partner | 6 (1–10) [33.3%] | 3 (1–10) [25.6%] | 7 (1–10) [37.0%] | NS |
| The frequency of intercourse | 5 (1–10) [29.0%] | 2 (1–10) [17.9%] | 6 (1–10) [35.2%] | 0.0168 |
| The quality of your sexual life | 5 (1–10) [29.0%] | 2 (1–10) [20.5%] | 6 (1–10) [33.3%] | 0.0340 |
| Were you honest with your partner? | ||||
| Yes, totally | 61.3% (57 pts) | 69.2% (27 pts) | 55.6% (30 pts) | NS° |
| Yes, but I could not wholly express my discomfort | 19.4% (18 pts) | 12.8% (5 pts) | 24.1% (13 pts) | NS° |
| No, because I didn’t want to hurt my partner’s feeling | 9.7% (9 pts) | 12.8% (5 pts) | 7.4% (4 pts) | NS° |
| No, but my partner raised the issue | 2.1% (2 pts) | 2.6% (1 pt) | 1.9% (1 pt) | NS° |
| Not answered | 7.5% (7 pts) | 2.6% (1 pt) | 11.1% (6 pts) | NS° |
| In hindsight, would you choose to undergo RRM again? | ||||
| Yes, because of the reduction in BC risk. | 49.5% (46 pts) | 56.4% (22 pts) | 44.4% (24 pts) | NS° |
| Yes, because of the reduction in screening-related stress. | 7.6% (7 pts) | 7.7% (3 pts) | 7.4% (4 pts) | NS° |
| Yes, because of the reduction in BC risk and screening-related stress | 37.6% (35 pts) | 35.9% (14 pts) | 38.9% (21 pts) | NS° |
| No, because of the cosmetic result of RRM on body appearance | 1.1% (1 pt) | - | 1.9% (1 pt) | - |
| Not answer | 4.3% (4 pts) | - | 7.4% (4 pts) | - |
| Overall satisfaction of RRM | 10 (1–10) [82.8%] | 10 (4–10) [84.6%] | 10 (1–10) [79.6%] | NS° |
pts = participants, RRM = Risk-Reducing Mastectomy, BC = Breast Cancer, OC = Ovarian Cancer, NS = not statistically significant. * p-value calculated with two-tailed Mann—Whitney U test. ° p-value calculated with Fisher Exact test.