| Trial name or title | Improved Dementia End of life care at local Aged care facilities (IDEAL study) |
| Methods | Cluster randomised trial, with residential aged care facility unit of randomisation |
| Participants | Residents with advanced dementia, staged as FAST 6a or greater |
| Interventions | Intervention: case conferencing, with a study‐trained palliative care co‐ordinator at each facility providing ongoing education and mentoring to other staff. Case conferencing for each participant once specific trigger points are reached, to plan further care. Control: usual care |
| Outcomes |
Primary outcomes (family‐rated): Symptom‐related comfort (CAD‐EOLD) last 7 days Symptom management last 90 days (SM‐EOLD) Family satisfaction with care during the last 90 days of life (SWC‐EOLD) Secondary outcomes (nurse‐rated): Symptom‐related comfort 7 days (CAD‐EOLD) Symptom manage 90 days (SM‐EOLD) QoL (QUALID) EQ‐5D‐5L Process outcomes: Person‐centred approach to care (PCECAT) Staff attitudes to, knowledge and confidence in providing palliative/EOL care (PCADQ) Quality of EOL care: acute care episodes, aggressive medical intervention |
| Starting date | 2012 |
| Contact information | Dr Tim Luckett, University of Technology Sydney (UTS) (t.luckett@unsw.edu.au) |
| Notes | Recruitment closed, follow‐up completed |
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