Table 1.
Participant Demographic, Clinical and HBM Related Variables by Readiness for Genetic Counseling
| Total (n=111) | Pre-contemplation (n=63) | Contemplation (n=48) | |
|---|---|---|---|
| Demographics/Clinical | |||
| Age | 62.2 (10.8) | 64.68 (10.33) | 60.60 (10.45) |
| Hispanic | |||
| Yes | 4 (3.7) | 3 (4.8) | 1 (2.2) |
| No | 104 (96.3) | 59 (95.2) | 45 (97.8) |
| Race | |||
| White | 102 (91.9) | 58 (92.1) | 44 (91.7) |
| Black | 3 (2.7) | 0 (0.0) | 3 (6.3) |
| Other | 6 (5.4) | 5 (7.9) | 1 (2.1) |
| Marital status | |||
| Single | 6 (5.4) | 3 (4.8) | 3 (6.3) |
| Married/Domestic Partner/Other | 61 (55.0) | 35 (55.6) | 26 (54.2) |
| Divorced/Separated | 26 (23.4) | 15 (23.8) | 11 (22.9) |
| Widowed | 18 (16.2) | 10 (15.9) | 8 (16.7) |
| Education | |||
| Up to GED/Diploma | 26 (23.4) | 13 (20.6) | 13 (27.1) |
| Some college | 35 (31.5) | 21 (33.3) | 14 (29.2) |
| College grad or beyond | 50 (45.0) | 29 (46.0) | 21 (43.8) |
| Employment status | |||
| Not employed | 13 (11.9) | 7 (11.1) | 6 (13.0) |
| Employed | 46 (42.2) | 27 (42.9) | 19 (41.3) |
| Retired/other | 50 (45.9) | 29 (46.0) | 21 (45.7) |
| Income | |||
| $0–34,999 | 41 (38.7) | 26 (43.3) | 15 (32.6) |
| $35,000–74,999 | 40 (37.7) | 23 (38.3) | 17 (37.0) |
| $75,000+ | 25 (23.6) | 11 (18.3) | 14 (30.4) |
| Insurance | |||
| Private | 58 (53.7) | 34 (56.7) | 24 (50.0) |
| Public | 50 (46.3) | 26 (43.3) | 24 (50.0) |
| Stage at diagnosis | |||
| DCIS | 20 (18.2) | 11 (17.7) | 9 (18.8) |
| Stage 1 | 26 (23.6) | 18 (29.0) | 8 (16.7) |
| Stage 2 | 35 (31.8) | 17 (27.4) | 18 (37.5) |
| Stage 3 | 11 (10.0) | 7 (11.3) | 4 (8.3) |
| Stage 4 | 5 (4.5) | 3 (4.8) | 2 (4.2) |
| Don’t know | 13 (11.8) | 6 (9.7) | 7 (14.6) |
| Ever heard of genetic counseling | |||
| Yes | 88 (79.3) | 51 (81.0) | 37 (77.1) |
| No | 21 (18.9) | 10 (15.9) | 11 (22.9) |
| Don’t know | 2 (1.8) | 2 (3.2) | 0 (0.0) |
| Health Beliefs | |||
| Mean perc. susceptibility | 3.07 (0.85) | 2.94 (0.94) | 3.24 (0.65) |
| Mean perc. severity | 3.26 (1.06) | 3.07 (1.11) | 3.57 (0.92) |
| Mean perc. risk (1–100) | 39.93 (29.0) | 38.03 (28.14) | 42.73 (29.65) |
| Mean perc. benefits | 3.75 (0.82) | 3.58 (0.81) | 3.96 (0.83) |
| Mean perc. barriers | 2.74 (0.62) | 2.88 (0.61) | 2.61 (0.59) |
| Mean perc. self-efficacy | 3.84 (0.52) | 3.83 (0.56) | 3.90 (0.43) |
| Mean decisional conflict | 3.54 (0.64) | 3.68 (0.59) | 3.43 (0.64) |
| Psychosocial Factors | |||
| IES (total) | 19.96 (16.52) | 16.41 (16.34) | 23.98 (16.20) |
| IES (intrusive subscale) | 8.32 (8.71) | 6.26 (7.67) | 10.43 (9.47) |
| IES (avoidance subscale) | 11.54 (9.37) | 10.08 (9.61) | 13.44 (9.17) |
| Mean cancer worry | 1.93 (0.69) | 1.76 (0.67) | 2.12 (0.64) |
| Cues to Action | |||
| Aware of parents’ history | |||
| No, don’t know either | 6 (5.4) | 3 (4.8) | 3 (6.3) |
| Yes, mother and father | 95 (85.6) | 53 (84.1) | 42 (87.5) |
| Yes, mother only | 10 (9.0) | 7 (11.1) | 3 (6.3) |
| Yes, father only | 0 (0.0) | 0 (0.0) | 0 (0.0) |
| Any family member encourages genetic counseling | |||
| No | 74 (67.9) | 48 (77.4) | 26 (55.3) |
| Yes | 35 (32.1) | 14 (22.6) | 21 (44.7) |
| Having FDR with BRCA | |||
| Male breast cancer | 2 (1.8) | 0 (0.0) | 2 (4.2) |
| Male melanoma | 13 (11.7) | 8 (12.7) | 5 (10.4) |
| Male pancreatic cancer | 4 (3.6) | 2 (3.2) | 2 (4.2) |
| Male prostate cancer | 22 (19.8) | 14 (22.2) | 8 (16.7) |
| Male other | 34 (30.6) | 23 (36.5) | 11 (22.9) |
| Female breast cancer | 45 (40.5) | 30 (47.6) | 15 (31.3) |
| Female melanoma | 14 (12.6) | 7 (11.1) | 7 (14.6) |
| Female pancreatic cancer | 6 (5.4) | 3 (4.8) | 3 (6.3) |
| Female other cancer | 42 (37.8) | 27 (42.9) | 15 (31.3) |
| HCP wants me to get genetic counseling | |||
| Strongly disagree | 8 (7.2) | 5 (7.9) | 3 (6.3) |
| Disagree | 12 (10.8) | 9 (14.3) | 3 (6.3) |
| Neither | 56 (50.5) | 31 (49.2) | 25 (52.1) |
| Agree | 16 (14.4) | 7 (11.1) | 9 (18.8) |
| Strongly agree | 3 (2.7) | 3 (4.8) | 0 (0.0) |
| N/A | 16 (14.4) | 8 (12.7) | 8 (16.7) |