Table 1.
Summary of the 25-participant’s socio-demographics, clinical features and themes explored
| n = 25 | % | |
|---|---|---|
| Age (years) | ||
| > 30 | 15 | 60 |
| < 30 | 10 | 40 |
| Ethnicity (self-reported) | ||
| Mixed Ancestry | 7 | 28 |
| Black African | 18 | 72 |
| Educational level | ||
| Below Secondary level | 5 | 20 |
| Secondary level | 10 | 40 |
| At college/university/job training | 5 | 20 |
| Completed college/university/job training | 5 | 20 |
| Job status | ||
| Employed | 6 | 24 |
| Unemployed | 17 | 68 |
| Student | 2 | 8 |
| Disability grant recipients | 6 | 24 |
| Marital status | ||
| Married | 4 | 16 |
| Separated | 3 | 12 |
| Single | 18 | 72 |
| SLE features | ||
| Lupus nephritis | 6 | 24 |
| Skin/discoid lupus | 6 | 24 |
| Arthritis | 25 | 100 |
| Disease Activitya | ||
| High disease activity | 8 | 32 |
| Quiescent disease | 17 | 68 |
| Themes explored | ||
| Physical Impairment: | ||
| Pain | 19 | 76 |
| Fatigue | 17 | 68 |
| Emotional Health | 25 | 100 |
| Employment | 25 | 100 |
| Social functioning | 8 | 32 |
| Sexuality | 22 | 88 |
| Aesthetic concerns | 20 | 80 |
| Fertility issues | 14 | 56 |
| Adherence to treatment | 11 | 44 |
| Coping mechanisms | 21 | 84 |
aThe Physicians Global assessment of SLEDAI is a score of 1 to 4 in categories of 0 = No activity, 1 = Mild, 2 = Moderate, 3 = Severe [20]