Table 1.
The demographics of interviewees
| Code/name of participants | Gender | Date of birth | Degree of higher education | Nationality | Medical condition |
| I1 Alan Thomas | M | NA | No | UK | Ataxia |
| I2 Amy Tenderich | F | 1966 | Yes | USA | Type 1 diabetes |
| I3 Dave deBronkart | M | 1950 | Yes | USA | Renal cell carcinoma |
| I4 Hugo Campos | M | NA | Yes | USA | Hypertrophic cardiomyopathy |
| I5 Michael Seres | M | 1960 | Yes | United Kingdom | Crohn’s disease bowel transplant recipient and cancer patient. |
| I6 Kerri Morrone Sparling | F | NA | Yes | USA | Type 1 diabetes |
| I7 Marie Ennis O’Connor | F | NA | Yes | Ireland | Breast cancer |
| I8 Regina Holliday | F | 1972 | No | USA | Renal cell carcinoma (husband) |
| I9 Renza Scibilia | F | NA | Yes | Australia | diabetes |
| I10 Sara Riggare | F | 1971 | Yes | Sweden | Parkinson’s disease |
| I11Vanessa Carter | F | 1978 | No | South Africa | Facial difference and antibiotic resistance |